Last Revised 4-8-2009
HFA PRIVACY STATEMENT
Purpose:
This privacy statement discloses the privacy practices for HEMOPHILIA FEDERATION OF AMERICA (HFA) for those persons who visit the HFA website, www.hemophiliafed.org. The HFA Privacy Statement applies solely to the HFA website. The goal of HFA is to a secure the privacy of users of the website. HFA is dedicated to protecting your privacy and ensuring your ability to use our site with confidence.
Information Collection and Usage:
Submission of personal information on the HFA website is optional. Users can visit the website without revealing any information about themselves. HFA is the sole owner of the information collected on this website. HFA will not sell, share, or rent this information to others in ways different from what is disclosed in this statement. HFA collects information from our users at several different points on the website. If one chooses to provide personal information for the purposes of correspondence, or registration for an HFA event, program or service and the like, this privacy statement discloses our use of that information and your consent thereto by use of the HFA website.
Cookies:
This site makes use of Internet Technology known as “cookies”. A cookie is a small data file that can contain information such as a user identification that the site uses to track the pages you have visited. However, the only personal information a cookie can contain is that which you supply. Any material or information which you supply, transmit or post on this website, by any means, will be treated as non-confidential and non-proprietary, with the exception of Credit Card information which is transmitted via encrypted methods to protect privacy. Credit Card information remains confidential. The HFA website contains registration forms which require users to provide contact information, such as name and email address, and demographic information, such as address and zip code. HFA uses this registration and contact information to send the HFA newsletter and other HFA publications in furtherance of the HFA mission and vision statements. This information you supply is used as part of the HFA database and mailing list.
If you do not wish to be included on the HFA database and mailing list, you will have the opportunity to designate such on the forms you submit online to HFA. Users may opt-out of receiving future contact, publications, mailings and other communications from HFA at any time by notifying the HFA headquarters via the contact information contained on the HFA website.
Outside Links:
The HFA website contains links to other websites. HFA is not responsible for any information posted on any of these other websites and HFA is not responsible for the privacy practices of other websites. Once one leaves the HFA website it is strongly advised that the privacy statements of those outside websites be read prior to viewing. The HFA privacy statement applies solely to the HFA website.
Notification of Changes:
Any changes to the HFA privacy statement HFA collection and use of information policy will be disclosed on this Privacy Statement page. HFA will use information in accordance with the Privacy Statement in effect at the time the information was collected.
User Agreement:
The use and viewing of the HFA website constitutes an agreement that you accept the provisions of this HFA privacy statement and agree to abide by all of the terms and conditions contained herein. If you do not agree with the terms and conditions of this HFA Privacy Statement, you are not authorized to use or view the HFA website.





