HFA News & Notes

WFH appoints John Bournas as new CEO/ ED

Click for link to WFH Montreal, Canada, January 10, 2012 — The World Federation of Hemophilia is pleased to [...] Read More >>

U.S. Department of Health and Human Services releases Essential Health Benefits Bulletin

On Monday, Dec. 16, the U.S. Department of Health and Human Services (HHS) released a bulletin outlining guidance [...] Read More >>

BAXTER: PHASE I TRIAL OF LONGER-ACTING RECOMBINANT FVIII

Link to Baxter’s Press Release BAXTER INITIATES PHASE I CLINICAL TRIAL OF LONGER-ACTING RECOMBINANT FVIII [...] Read More >>

Contact Info

Hemophilia Federation of America
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Nathan Wilkes introduces President OBAMA at town hall meeting

Nathan Wilkes, a bleeding disorders community member,  had the opportunity to introduce President OBAMA today at a townhall meeting in Grand Junction, CO.  Before the introduction, he highlighted how his 6-year old son with hemophilia nearly reached the lifetime insurance cap.  He emphasized his family’s concerns with health insurance coverage.  HFA is excited Nathan had the opportunity to represent the bleeding disorders community before millions and raise awareness of the issues the rare disorders communities face.   To watch Nathan’s introduction and President Obama’s speech please CLICK HERE.  Way to go Nathan!

Nathan Wilkes shakes hands with President OBAMA

Nathan Wilkes shakes hands with President OBAMA