Nathan Wilkes, a bleeding disorders community member, had the opportunity to introduce President OBAMA today at a townhall meeting in Grand Junction, CO. Before the introduction, he highlighted how his 6-year old son with hemophilia nearly reached the lifetime insurance cap. He emphasized his family’s concerns with health insurance coverage. HFA is excited Nathan had the opportunity to represent the bleeding disorders community before millions and raise awareness of the issues the rare disorders communities face. To watch Nathan’s introduction and President Obama’s speech please CLICK HERE. Way to go Nathan!
Nathan Wilkes shakes hands with President OBAMA
2 Responses to “Nathan Wilkes introduces President OBAMA at town hall meeting”
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The HFA is not endorsing specific health care reform legislation. However, we do support and strongly encourage our community to follow Nathan’s example and share individual stories.
Please utilize HFA’s Legislative Action Center to share your own views and perspective with congress and the administration. http://capwiz.com/hemophilia/issues/alert/?alertid=13894936
– Kimberly Haugstad, HFA Executive Director
I think it is very important to put a face to whatever disorder you are dealing with. My 6 year old grandson has hemophilia. Without the use of prophy and of course his port at age 18 months, our lives would have been very difficult. So those advances are so important. But if health care becomes too expensive to be affordable, the research will not be needed. My daughter has been to the state house to lobby and has always been very well received, but we have to continue to make people aware of our disorder and how important health care is.