HFA News & Notes

WFH appoints John Bournas as new CEO/ ED

Click for link to WFH Montreal, Canada, January 10, 2012 — The World Federation of Hemophilia is pleased to [...] Read More >>

U.S. Department of Health and Human Services releases Essential Health Benefits Bulletin

On Monday, Dec. 16, the U.S. Department of Health and Human Services (HHS) released a bulletin outlining guidance [...] Read More >>

BAXTER: PHASE I TRIAL OF LONGER-ACTING RECOMBINANT FVIII

Link to Baxter’s Press Release BAXTER INITIATES PHASE I CLINICAL TRIAL OF LONGER-ACTING RECOMBINANT FVIII [...] Read More >>

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Baxter Recognizes Outstanding Hemophilia Advocacy Initiatives

 

It is with great pleasure that Baxter applauds the Partnership for Advocacy and Communications Training (PACT) Grant winners. Run by the Hemophilia Association of New Jersey (HANJ) and supported through a grant from Baxter, the PACT Grant Program provides financial assistance to support a wide range of advocacy programs from the bleeding disorders community. The winners, whose proposals were reviewed and selected by an independent review panel, are:

ALASKA HEMOPHILIA ASSOCIATION

ARIZONA HEMOPHILIA ASSOCIATION

HEMOPHILIA COUNCIL OF CALIFORNIA

HEMOPHILIA FOUNDATION OF MICHIGAN

NEW ENGLAND HEMOPHILIA ASSOCIATION

NEW YORK STATE HEMOPHILIA ADVOCACY COALITION

OHIO BLEEDING DISORDERS COUNCIL

THE PENNSYLVANIA CHAPTERS OF NHF

VIRGINIA HEMOPHILIA FOUNDATION & HEMOPHILIA ASSOCIATION OF THE CAPITAL AREA 

These nine PACT Grant winners will be recognized at Baxter’s “Your Tomorrow Can Start Today: Finding the Moment” NHF symposium at 7 AM on Saturday, October 31. Baxter celebrates the advocacy efforts of hemophilia organizations across the country. By empowering members, they help protect access to quality hemophilia care.

Since the inception of the PACT Grant Program in 2005, Baxter has provided more than $975,000 for forty two state advocacy initiatives. It is our privilege to serve the hemophilia community, and we look forward to supporting more community-led efforts in the future. Advocacy support, including the PACT Grant Program, is just one more way that Baxter will be there when you need us.