HFA News & Notes

Recall of Crickit® Convenience Kits

Click here for FDA recall North American Rescue, LLC Announces A Follow-Up to the Recall of Crickit® Convenience [...] Read More >>

WFH appoints John Bournas as new CEO/ ED

Click for link to WFH Montreal, Canada, January 10, 2012 — The World Federation of Hemophilia is pleased to [...] Read More >>

U.S. Department of Health and Human Services releases Essential Health Benefits Bulletin

On Monday, Dec. 16, the U.S. Department of Health and Human Services (HHS) released a bulletin outlining guidance [...] Read More >>

Contact Info

Hemophilia Federation of America
210 7th St. SE, Suite 200B
Washington D.C., 20003
800.230.9797
202.675.6984
202.675.6983

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Kakkis Every Life Foundation Art Contest

By Michelle Pascucci

The Kakkis Every Life Foundation is having an art contest for individuals living with rare disorders.  The goal is “to empower artists affected by Rare Diseases to express their unique struggle with a rare disease.” Two Visa gift cards per age group and a Flip Video camera will be given away.  This is a great opportunity to share your talents and story with the rare disorders community. The deadline is December 31st, 2009.  For more information on eligibility and rules visit http://www.kakkis.org/Contest/Contest.aspx.