HFA News & Notes

Recall of Crickit® Convenience Kits

Click here for FDA recall North American Rescue, LLC Announces A Follow-Up to the Recall of Crickit® Convenience [...] Read More >>

WFH appoints John Bournas as new CEO/ ED

Click for link to WFH Montreal, Canada, January 10, 2012 — The World Federation of Hemophilia is pleased to [...] Read More >>

U.S. Department of Health and Human Services releases Essential Health Benefits Bulletin

On Monday, Dec. 16, the U.S. Department of Health and Human Services (HHS) released a bulletin outlining guidance [...] Read More >>

Contact Info

Hemophilia Federation of America
210 7th St. SE, Suite 200B
Washington D.C., 20003
800.230.9797
202.675.6984
202.675.6983

© 2011 Hemophilia Federation of America · Board of Directors Only · BB Admin Only · Privacy & Legal

Are Personal Health Records making the grade?

PatientPrivacyRights.org has just released its first Report Card grading various managers of Personal Health Records.

The Full article detailing their report can be found here: http://www.patientprivacyrights.org/site/PageServer?pagename=PHR_Report_Card

Additional Information about Personal Health Information can be found at this link for their Personal Health Record Frequently Asked Question page here: http://www.patientprivacyrights.org/site/PageServer?pagename=PHR_RC_FAQs

EXCERPT OF ARTICLE:

A “PHR” is a Personal Health Record.  PHRs can collect and store official records, labs, tests, and claims data directly deposited by providers.  They can also store other health-related data such as heart rate, glucose levels, medications, allergies, exercise habits, lifestyle, sexual history, personal notes and other data you create.

The term ‘PHR’ implies you control this type of electronic health record – because its ‘personal,’ it’s yours.  But that is simply not true of all PHRs.

How much control do you really have?

Think twice about who you allow to see, use, or control your most sensitive, personal health records, from DNA to prescriptions. Patient Privacy Rights (PPR) did our best to decode PHR privacy policies and spell out what control you have over your information.  PPR makes no recommendations on specific PHRs.  The Report Card is our opinion based on the information available on these companies’ websites.

Material provided courtesy of PatientPrivacyOrg, for more information on this subject please consult: www.patientprivacy.org