HFA News & Notes

HFA Observes National Hepatitis Awareness Month

HFA Observes National Hepatitis Awareness Month FOR IMMEDIATE RELEASE: May 3, 2012 Contact: Richard Pezzillo [...] Read More >>

Community Pharmacists Lose Bid to Immediately Block Express Scripts-Medco Deal

By Rebecca Adams, CQ HealthBeat Associate Editor A federal judge has denied the request of a group of community [...] Read More >>

People with Bleeding Disorders and HCV

Link to Access HCV Therapy Site Friends and supporters, We should all be enormously encouraged by the increasing [...] Read More >>

Contact Info

Hemophilia Federation of America
210 7th St. SE, Suite 200B
Washington D.C., 20003
800.230.9797
202.675.6984
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Kisa's Weekend Travels: Hemophilia of Indiana Annual Meeting

On August 28-29, Hemophilia of Indiana held their annual meeting in Indianapolis.  HFA’s Michelle Burg (Program Director) and Lauren Neybert (Program Coordinator) arrived Friday night to set-up the HFA booth.

On Saturday,  the morning agenda began with a new program called, PEN’s Pulse on the Road (POTR) led by Laurie Kelley, President of LA Kelley Communications, Inc., and sponsored by Baxter BioScience.  POTR is a series of health insurance symposia where select bleeding disorders experts discuss changes to the health system and the insurance reforms.  The expert panel consisted of Michael Bradley (Baxter), Michelle Rice (NHF), Judy Moore (Indiana HTC) and me. 

During the panel discussion, panelist had the opportunity to address the new health care law and answer questions from meeting attendees.  Concerns and question topic areas included:

  • The financial impact of the new health law to the bleeding disorders community
  • Immediate elimination of lifetime and annual caps
  • The possibility of repealing the new law
  • The regulatory process and enforcing the new law
  • The impact of the new law on small businesses

POTR will head to the Washington DC area to participate in the Hemophilia Association of the Capital Area (HACA) annual educational seminar on October 23.  Congratulations to Hemophilia of Indiana on a successful meeting.  Stay tuned for additional highlights and video of POTR in Indiana.  You can read more about the meeting at Hemablog:  

 http://blog.kelleycom.com/2010/08/health-care-reform-pulse-on-road.html