National Hemophilia Foundation
Search for a Hemophilia Treatment Center
The Coalition for Hemophilia B
Health
Office of Consumer Information and Insurance Oversight (Health Care Reform)
Kaiser Family Foundation (KFF)
KFF: The Process of Health Care Reform Legislation
Advocacy for Patients with Chronic Illness, Inc.
Heritage Foundation’s Center for Health Policy Studies
The Brookings Institution’s Engleberg Center for Health Care Reform
The Health Policy Institute at Georgetown University ihcrp.georgetown.edu
Coalition for Health Services Research
National Academy for State Health Policy
Center for Medicare Advocacy, Inc.
National Organization for Rare Disorders
Coalition for Genetic Fairness
Economy
U.S. Bureau of Labor Statistics
National Conference of State Legislatures
Center on Budget and Policy Priorities
American Recovery and Reinvestment Act
Congress
Senate Health, Education, Labor, Pensions Committee
House Ways and Means Committee
House Energy and Commerce Committee
State
Legal Battles of Health Care Reform
National Association of Insurance Commissioners
HHS or State Run High Risk Pools
Solicitation for State Proposals to Operate Qualified High Risk Pools
Health Care Reform – Market Reforms – Provisions and Timeline
Insurance Commissioners’ Health Reform Timeline
National Governors Association
Health Reform Implementation Timeline – Working Document
National Academy for State Health Policy
National Conference of State Legislatures
National Governers Association-Health Care Reform
NCSL Health Care Reform Webinars
Stateline News – Health Care Reform
Other
Family Advocacy
Wright’s Law: This site is an extremely helpful resource for families, teachers and advocates working with children with disabilities.
Please assist us in keeping this list up to date. If you find a discrepancy, please contact us at info@hemophiliafed.org
