The HFA believes it is important to equip community members with tools to succeed in their advocacy efforts. For that reason, we invite you to use the tools on this page to maximize your contact with federal and state policy makers. The HFA has taken a position on several pressing issues that impact the community. To read our position statements please visit the HFA Issues and Positions webpage.
Visiting Federal and State Legislators
Understanding how best to communicate with legislators is an integral part of effective advocacy. The Congressional District Office Visits: Steps and Tips for Success is a short guide to successfully planning your visit with a legislator. Likewise, Brief Talking Points offers a quick “cheat-sheet” on pending legislation that affects the bleeding disorders community. It is important to familiarize yourself with the issues. You can also find additional links on the HFA Helpful Links page.
AFFORDABLE CARE ACT IMPLEMENTATION
Regulatory and Implementation Process
Article on Regulatory Process
Read about the regulatory process on the HFA Blog at:
http://hemophiliafed.org/2010/08/31/so-we-passed-the-law-what-next-a-summary-of-the-regulatory-process/
Regulatory Comment Letters
The HFA, American Plasma Users Coalition (A-PLUS) and the National Organization for Rare Disorders (NORD) have submitted comments in response to recent interim final regulations that have been published by the U.S. Department of of Health and Human Services.
Affordable Care Act
Patient Protection and Affordable Care Act
Signed into law (Public Law 111-148) by President Obama on March 23, 2010
Health Care and Education Reconciliation Act of 2010
Signed into law (Public Law 111-152) by President Obama on March 30, 2010
STATE
State Legislative Map: This map is a great resource to see what is going on in your state. It will give you the most up-to-date bill and progress updates. If you do not find a topic of interest or bill that you are following please contact the Public Policy Team.
Standards of Care/Service
Various states across the country have introduced legislation that underscore the importance of standards of care or service for people with bleeding disorders. The HFA has provided links in the chart below to videos of hearings held by state legislatures, documents, testimonies and legislation to assist you in formulating similar legislation in your state.
TAKE ACTION in your state and become involved in state legislative efforts that impact the bleeding disorder community. To find out the dates of your state’s legislative session please visit the National Conference of State Legislatures (NCSL). You can take action by visiting the HFA Legislative Action Center webpage.
Our mission is to assist and advocate for the bleeding disorders community. This page is dedicated to providing a few tools to assist with advocacy efforts. If there is something you would like to see featured on this page please contact our office.
HFA Public Policy Team:
Kisa Carter, Public Policy Director, k.carter@hemophiliafed.org
Eboni Morris, Policy Analyst, e.morris@hemophiliafed.org
