HFA News & Notes

HFA Observes National Hepatitis Awareness Month

HFA Observes National Hepatitis Awareness Month FOR IMMEDIATE RELEASE: May 3, 2012 Contact: Richard Pezzillo [...] Read More >>

Community Pharmacists Lose Bid to Immediately Block Express Scripts-Medco Deal

By Rebecca Adams, CQ HealthBeat Associate Editor A federal judge has denied the request of a group of community [...] Read More >>

People with Bleeding Disorders and HCV

Link to Access HCV Therapy Site Friends and supporters, We should all be enormously encouraged by the increasing [...] Read More >>

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Hemophilia Federation of America
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Washington D.C., 20003
800.230.9797
202.675.6984
202.675.6983

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HFA Observes National Hepatitis Awareness Month

May 3rd, 2012 by rpezzillo

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Community Mourns Loss of National Champion for Woman’s Bleeding Disorders

April 24th, 2012 by rpezzillo

4-23-12 --- Our community has lost a national champion for women’s bleeding disorders, Anna DeSimone. Anna, a resident of New Jersey and former board member of HFA,  was one of the first to help drive awareness, educate and help correctly diagnose, ...

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Press Release: HFA Elects New Executive Board During Symposium

April 12th, 2012 by rpezzillo

HFA Elects New Executive Board During Symposium FOR IMMEDIATE RELEASE: April 12, 2012 Contact: Richard Pezzillo (202)-675-6984 r.pezzillo@hemophiliafed.org Link to PDF of HFA Elects New Executive Board Washington, D.C. – During their recent annual Symposium in Santa Clara, California, the Hemophilia Federation of America’s (HFA) ...

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Prese Relase: March is Hemophilia Awareness Month

March 12th, 2012 by Katie Whittle

Link to PDF of Hemophilia Awareness Month Press Release FOR IMMEDIATE RELEASE March 12, 2012 HFA Celebrates National Hemophilia Awareness Month March is Designated to Create Public Awareness about Bleeding Disorders Washington, D.C. – In 1986, President Ronald Regan designated the month of ...

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Rare Disease Day

February 8th, 2012 by mlandseadel
Rare Disease Day February 29

Celebrate Rare Disease Day on February 29th 2012! HFA is a proud partner of NORD, the National Organization for Rare Disorders.

Symposium 2012

November 1st, 2011 by mlandseadel
Symposium 2012 - Main

March 30-31, 2012 | Santa Clara, CA | Embracing Our Future through Advocacy, Fitness & Technology Register Online Today!

Chinese Firms Linked to Tainted Heparin Still Supplying U.S.

October 28th, 2011 by Eboni Morris

By Anna Edney Courtesy of Bloomberg News Oct. 26 (Bloomberg) -- Two Chinese companies implicated in supplying contaminated ingredients three years ago to Baxter International Inc. for its blood thinner heparin are still supplying product to the U.S., Republican lawmakers said. Baxter recalled ...

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Advisory Panel Releases ‘Essential Benefits’ Report

October 7th, 2011 by Eboni Morris

The Institute of Medicine (IOM) released its report of recommendations to the United States Department of Health and Human Services regarding what health benefits should  be provided by insurance plans under the Health reform law - the Affordable Care Act (ACA).   ...

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HFA Receives Multi-year Cooperative Agreement from CDC

October 5th, 2011 by sswindle

FOR IMMEDIATE RELEASE: Tuesday, October 4, 2011  HFA Receives Multi-year Cooperative Agreement from CDC Washington, DC: Hemophilia Federation of America (HFA), a national nonprofit headquartered in Washington, DC is pleased to announce the award of a three year Cooperative Agreement from the Centers ...

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When medical bills top $1 million: One union’s situation highlights reality of big insurance claims

September 7th, 2011 by sswindle

Aaron Reeves, Community Advocate, Kimberly Haugstad, HFA ED and Eboni Morris, HFA Policy Manager are all quoted in the following article by Christopher Snowbeck, Health Policy writer from Pioneer Press:  http://www.twincities.com/ci_18816321?IADID=Search-www.twincities.com-www.twincities.com