Committee of Ten Thousand http://www.cott1.org/
Center for Disease Control http://www.cdc.gov/
Hemophilia Treatment Centers http://www.cdc.govncbddd/hbd/htc_list.htm
National Hemophilia Foundation http://www.hemophilia.org/
World Hemophilia Federation http://www.wfh.org/
HFA Member Organizations http://hemophiliafed.org/community/hfa-member-organizations/
Search for a Hemophilia Treatment Center
The Coalition for Hemophilia B
Health
Families USA www.familiesusa.org
Kaiser Family Foundation (KFF) www.kff.org
KFF: The Process of Health Care Reform Legislation www.kaiseredu.org/tutorials/reformprocess/player.html
Advocacy for Patients with Chronic Illness, Inc. www.advocacyforpatients.org
The Commonwealth Fund www.commonwealthfund.org
Heritage Foundation’s Center for Health Policy Studies www.heritage.org
The Brookings Institution’s Engleberg Center for Health Care Reform www.brookings.org
The Health Policy Institute at Georgetown University ihcrp.georgetown.edu
Community Catalyst www.commmunitycatalyst.org
Alliance for Health Reform http://www.allhealth.org/index.asp
Coalition for Health Services Research http://www.chsr.org/
National Academy for State Health Policy http://www.nashp.org/index.cfm
Inside Health Policy http://insidehealthpolicy.com/
Center for Medicare Advocacy, Inc. http://www.medicareadvocacy.org/default.htm
National Organization for Rare Disorders http://www.rarediseases.org
Coalition for Genetic Fairness http://www.geneticfairness.org/
Economy
U.S. Bureau of Labor Statistics http://www.bls.gov/news.release/pdf/empsit.pdf
U.S. Department of Commerce http://www.commerce.gov/NewsRoom/EconomicNews/index.htm?er=true
National Conference of State Legislatures http://www.ncsl.org/statefed/2009economicstimulus.htm
Center on Budget and Policy Priorities http://www.cbpp.org/
The Washington Post http://www.washingtonpost.com/wp-dyn/content/politics/
American Recovery and Reinvestment Act http://www.recovery.gov/
Congress
Congressional Budget Office www.cbo.gov
Senate Finance Committee http://finance.senate.gov/
Senate Health, Education, Labor, Pensions Committee http://help.senate.gov/
House Ways and Means Committee http://waysandmeans.house.gov/
House Energy and Commerce Committee http://energycommerce.house.gov/
Other
http://money.cnn.com/news/storysupplement/economy/gapmap/index.htm
http://finance.senate.gov/press/Bpress/2009press/prb020209b.pdf
http://www.cbo.gov/budget/econproj.shtml
Family Advocacy
www.wrightslaw.com This site is an extremely helpful resource for families, teachers and advocates working with children with disabilities.
Please assist us in keeping this list up to date. If you find a discrepancy, please contact us at info@hemophiliafed.org
