HFA News & Notes

HFA Observes National Hepatitis Awareness Month

HFA Observes National Hepatitis Awareness Month FOR IMMEDIATE RELEASE: May 3, 2012 Contact: Richard Pezzillo [...] Read More >>

Community Pharmacists Lose Bid to Immediately Block Express Scripts-Medco Deal

By Rebecca Adams, CQ HealthBeat Associate Editor A federal judge has denied the request of a group of community [...] Read More >>

People with Bleeding Disorders and HCV

Link to Access HCV Therapy Site Friends and supporters, We should all be enormously encouraged by the increasing [...] Read More >>

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HFA Observes National Hepatitis Awareness Month

May 3rd, 2012 by rpezzillo

HFA Observes National Hepatitis Awareness Month FOR IMMEDIATE RELEASE: May 3, 2012 Contact: Richard Pezzillo (202)-675-6984 r.pezzillo@hemophiliafed.org Link to PDF of HFA Celebrates Hepatitis Awareness Month Washington, D.C. – In 2001, the Centers for Disease Control (CDC) and Prevention designated the month of May as Hepatitis Awareness Month to bring awareness and attention to those living with viral hepatitis. In the 1980s and 1990s, thousands of people with hemophilia contracted HIV and Hepatitis C (HCV) from the contaminated ...

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Community Pharmacists Lose Bid to Immediately Block Express Scripts-Medco Deal

April 27th, 2012 by Eboni Morris

By Rebecca Adams, CQ HealthBeat Associate Editor A federal judge has denied the request of a group of community pharmacists to immediately stop the acquisition of Medco Health Solutions by Express Scripts, Inc. The judge will next decide whether to throw ...

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People with Bleeding Disorders and HCV

April 27th, 2012 by Katie Whittle

Link to Access HCV Therapy Site Friends and supporters, We should all be enormously encouraged by the increasing cascade of promising results from investigational HCV drug trials.  A couple of years ago, greatly improved therapy was a dream.  Now, some investigational drug ...

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Community Mourns Loss of National Champion for Woman’s Bleeding Disorders

April 24th, 2012 by rpezzillo

4-23-12 --- Our community has lost a national champion for women’s bleeding disorders, Anna DeSimone. Anna, a resident of New Jersey and former board member of HFA,  was one of the first to help drive awareness, educate and help correctly diagnose, ...

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Press Release: Families Throughout the U.S. Celebrate World Hemophilia Day

April 17th, 2012 by rpezzillo

Families Throughout the U.S. Celebrate World Hemophilia Day FOR IMMEDIATE RELEASE: April 12, 2012 Contact: Richard Pezzillo (202)-675-6984 r.pezzillo@hemophiliafed.org Link to PDF of World Hemophilia Day  Washington, DC– Today, Tuesday, April 17, tens of thousands of families across our nation and around the world are celebrating ...

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Press Release: HFA Elects New Executive Board During Symposium

April 12th, 2012 by rpezzillo

HFA Elects New Executive Board During Symposium FOR IMMEDIATE RELEASE: April 12, 2012 Contact: Richard Pezzillo (202)-675-6984 r.pezzillo@hemophiliafed.org Link to PDF of HFA Elects New Executive Board Washington, D.C. – During their recent annual Symposium in Santa Clara, California, the Hemophilia Federation of America’s (HFA) ...

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Press Release: HFA Begins Accepting Applications for Items Program

April 3rd, 2012 by rpezzillo

Link to PDF of HFA Begins Accepting Applications for Items Program HFA Begins Accepting Applications for Items Program  Items Program Reimburses for Medically Necessary Items FOR IMMEDIATE RELEASE  April 3, 2012 Washington, D.C. – Today, Hemophilia Federation of America’s (HFA) Helping Hands Emergency Assistance Program ...

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Baxter, 2 mL Diluent Volume for Advate

March 26th, 2012 by Katie Whittle

BAXTER INTRODUCES 2 mL DILUENT VOLUME FOR ADVATE Providing Less Volume to Infuse   ADVATE is now available with a 2 mL diluent (sterile water for infusion) volume for dosage strengths ranging from 250 IU to 1700 IU. This represents a reduction ...

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Press Release: 2nd Anniversary of Affordable Care Act (ACA)

March 23rd, 2012 by Katie Whittle

Link to PDF of 2nd Anniversary of Affordable Care Act HFA Celebrates 2nd Anniversary of Affordable Care Act FOR IMMEDIATE RELEASE March 23rd, 2012 Washington, D.C. – Today marks the two-year anniversary of the passage of the Affordable Care Act, landmark legislation ...

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MCW Earns $10 Million Grant For vWD

March 22nd, 2012 by Katie Whittle

Fox6Now Article Link MILWAUKEE — The Medical College of Wisconsin is the recipient of a five-year, $10 million National Heart, Lung and Blood Institute Program Project Grant. The money will help the MCW continue genetic studies that seek to improve the ...

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HHS Considering Study on Blood Donation Standards for Gay and Bisexual Men

March 16th, 2012 by Eboni Morris

By Jane Norman, CQ HealthBeat Associate Editor The Department of Health and Human Services wants input on how to design a study that would detail under what circumstances men who have a history of sex with other men should be allowed ...

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How to Live Well With Chronic Pain: Steps You Can Take Today

March 15th, 2012 by Eboni Morris

From the American Pain Foundation: By Rebecca Rengo-Kocher, MA, MSW, LCSW, ACSW It’s easy to feel overwhelmed when you live with chronic pain. Every day life can be a struggle, seemingly impossible to overcome. You push yourself with every ounce of energy ...

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Baxter Recall: Gammagard Liquid

March 14th, 2012 by Katie Whittle

URGENT: BIOLOGIC RECALL INFORMATION Initiated by :  Baxter Healthcare Event Id :  151 Event Date :  03-14-2012 Therapy Gammagard Liquid 10% NDC Number Lot Number Size Packaging Expiration Date 0944-2700-06 LE12LG70AC 20g vial 11-25-2014 Reason Baxter Healthcare Corporation is voluntarily recalling lot LE12LG70AC of GAMMAGARD LIQUID, 10%, 20g size, product code 1502797, NDC# 0944-2700-06. This recall is being ...

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