HFA News & Notes

WFH appoints John Bournas as new CEO/ ED

Click for link to WFH Montreal, Canada, January 10, 2012 — The World Federation of Hemophilia is pleased to [...] Read More >>

U.S. Department of Health and Human Services releases Essential Health Benefits Bulletin

On Monday, Dec. 16, the U.S. Department of Health and Human Services (HHS) released a bulletin outlining guidance [...] Read More >>

BAXTER: PHASE I TRIAL OF LONGER-ACTING RECOMBINANT FVIII

Link to Baxter’s Press Release BAXTER INITIATES PHASE I CLINICAL TRIAL OF LONGER-ACTING RECOMBINANT FVIII [...] Read More >>

Contact Info

Hemophilia Federation of America
210 7th St. SE, Suite 200B
Washington D.C., 20003
800.230.9797
202.675.6984
202.675.6983

© 2011 Hemophilia Federation of America · Board of Directors Only · BB Admin Only · Privacy & Legal

News & Notes

Find more information about:
or search by other:

WFH appoints John Bournas as new CEO/ ED

January 11th, 2012 by Katie Whittle

Click for link to WFH Montreal, Canada, January 10, 2012 — The World Federation of Hemophilia is pleased to announce the appointment of John Bournas as CEO/Executive Director. Mr Bournas brings over fifteen years of senior managerial experience in the healthcare and not-for-profit sectors and international experience as a diplomat. His areas of expertise include management, business development, healthcare advocacy and cultivating relationships with stakeholders of the highest level of government. ...

(Keep Reading)

U.S. Department of Health and Human Services releases Essential Health Benefits Bulletin

January 6th, 2012 by Eboni Morris

On Monday, Dec. 16, the U.S. Department of Health and Human Services (HHS) released a bulletin outlining guidance to states on implementing Essential Health Benefits (EHBs).  As you may recall, the Affordable Care Act will require individuals to have insurance ...

(Keep Reading)

BAXTER: PHASE I TRIAL OF LONGER-ACTING RECOMBINANT FVIII

January 5th, 2012 by Katie Whittle

Link to Baxter's Press Release BAXTER INITIATES PHASE I CLINICAL TRIAL OF LONGER-ACTING RECOMBINANT FVIII TREATMENT FOR HEMOPHILIA A Investigational BAX 855 is based on ADVATE Factor VIII Molecule DEERFIELD, Ill., January 5, 2012 – Baxter International Inc. today announced the dosing of ...

(Keep Reading)

FDA Approves Baxter’s ADVATE as the Only FVIII for Routine Prophylaxis

December 19th, 2011 by Katie Whittle

Direct link to Press Release ADVATE for routine prophylaxis reduced annual bleed events in hemophilia A patients from forty-four to one as compared to an on-demand regimen in a clinical study Once every third day pharmacokinetic dosing option offers some patients the opportunity ...

(Keep Reading)

Treatment for Blood Disease Is Gene Therapy Landmark

December 12th, 2011 by Katie Whittle

By NICHOLAS WADE Published: December 10, 2011 Medical researchers in Britain have successfully treated six patients suffering from the blood-clotting disease known as hemophilia B by injecting them with the correct form of a defective gene, a landmark achievement in the troubled ...

(Keep Reading)

TX Bleeding Disorders Advisory

December 5th, 2011 by Katie Whittle

HFA Board Member Lew Collins has been appointed to the Texas State Bleeding Disorders Advisory Council. According to the Texas Department of State Health Services (DSHS) this advisory council will oversee: 1) public use data, outcome data, and other information ...

(Keep Reading)

Medicare Enrollment Period Ends December 7, 2011

December 2nd, 2011 by Eboni Morris

Medicare annual open enrollment ends in less than 1 week.  Medicare beneficiaries who do not have a Part D plan can enroll in one, and those who do have Part D coverage can change plans.  Beneficiaries can also return to ...

(Keep Reading)

NIH: World AIDS Day

December 2nd, 2011 by Katie Whittle

NIH Statement on World AIDS Day 2011 Anthony S. Fauci, M.D., Director, National Institute of Allergy and Infectious Diseases Jack Whitescarver, Ph.D., Director, NIH Office of AIDS Research Francis S. Collins, M.D., Ph.D., Director, NIH Direct Link to NIH statement This year, we commemorate World ...

(Keep Reading)

World AIDS Day

December 1st, 2011 by Katie Whittle

Today, December 1 is observed as World Aids Day. Established in 1988 by the World Health Organization, this day is established to ensure renewed and continual attention to the threat posed by HIV-AIDS. It is estimated by the Centers for ...

(Keep Reading)

Access to HCV Therapy

November 29th, 2011 by Katie Whittle

Next Push - Advanced Therapy Our Citizen Petition to the FDA in 2009 (with amendment), asked for recognition of the HCV crisis in our community and it requested the earliest possible access to advanced HCV therapies.  We have made substantial progress ...

(Keep Reading)

Get Out & Go: Partner of Gears for Good

November 28th, 2011 by Katie Whittle

Gears For Good Fall Newsletter

Congrats PACT Foundation Winners!

November 23rd, 2011 by Katie Whittle

PACT on HANJ's Website The PACT Program and the PACT Foundation Grants are two exciting services that are available to other chapters/associations throughout the country. HANJ, under the direction of Elena Bostick, administers both programs through Baxter Bioscience sponsored grants. Please review ...

(Keep Reading)

Baxter: Labeling Error on Sterile Water

November 17th, 2011 by Katie Whittle

Link to NHF's Medical Advisory November 16, 2011 Baxter Healthcare Corporation has sent a notice of a labeling error affecting the expiration date of the Sterile Water for Injection that is packaged as a diluent with RECOMBINATE . The Sterile Water for ...

(Keep Reading)