HFA News & Notes

HFA Observes National Hepatitis Awareness Month

HFA Observes National Hepatitis Awareness Month FOR IMMEDIATE RELEASE: May 3, 2012 Contact: Richard Pezzillo [...] Read More >>

Community Pharmacists Lose Bid to Immediately Block Express Scripts-Medco Deal

By Rebecca Adams, CQ HealthBeat Associate Editor A federal judge has denied the request of a group of community [...] Read More >>

People with Bleeding Disorders and HCV

Link to Access HCV Therapy Site Friends and supporters, We should all be enormously encouraged by the increasing [...] Read More >>

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Biogen Idec Press Release: Biogen Idec and Swedish Orphan Biovitrum Announce First Patient Dosed in Global Registrational Trial of Long-Lasting Recombinant Factor VIII Fc Fusion Protein

December 7th, 2010 by Katie Whittle

Click here for press release First Long-Lasting Factor VIII Candidate in Late-Stage Clinical Trial for Treatment of Hemophilia A WESTON, Mass. & STOCKHOLM, Dec 06, 2010 (BUSINESS WIRE) -- Biogen Idec (NASDAQ: BIIB) and Swedish Orphan Biovitrum (STO: SOBI) today announced that the first patient ...

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Study to Evaluate the Safety, Pharmacokinetics and Efficacy of Recombinant Factor VIII Fc Fusion Protein (rFVIIIFc) in Subjects With Severe Hemophilia A

December 7th, 2010 by Katie Whittle

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Study of Recombinant Factor IX Fc Fusion Protein (rFIXFc) in Subjects With Hemophilia B

December 7th, 2010 by Katie Whittle

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CSL Behring Announces Availability of Next Generation HeliTrax® System for People with Hemophilia A

December 1st, 2010 by sswindle

 Custom software platform is first internet-enabled mobile application to interface directly with patient management systems used by hemophilia treatment centers   KING OF PRUSSIA, Pa., Dec. 1, 2010 /PRNewswire/ -- CSL Behring announced today the availability of the next generation HeliTrax® System ...

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"Bad Blood" DVD Now On Sale!

December 1st, 2010 by Katie Whittle

BioRx Offers Free 2010 Kids Hemophilia Calendar

November 24th, 2010 by Katie Whittle

Link to article November 9, 2009 (Cincinnati, Ohio) - BioRx, a specialty pharmaceutical company, announces the availability of a free 2010 calendar to the hemophilia community. The annual BioRx Kids Hemophilia Calendar features artwork from children who either have ...

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BioRx Offers Scholarships to Bleeding Disorders Community

November 24th, 2010 by Katie Whittle

Link to article September 1, 2010 (Cincinnati, Ohio) BioRx and Hemophilia of North Carolina announce the availability of four 2011 BioRx Educational Scholarships in the amount of $2,000 each to individuals with bleeding disorders. The scholarships will be awarded ...

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Consumer Insurance Survey

November 23rd, 2010 by Eboni Morris

Health care reform will have a profound impact on persons with bleeding disorders as health insurance companies take steps to comply with various insurance market reform provisions. However, changes stemming from the health care reform law are only one piece ...

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POZ: "Blood, Sweat and Tears" by Shawn Decker

November 19th, 2010 by Katie Whittle

POZ article link POZ speaks with Marilyn Ness, Emmy Award-winning producer, about Bad Blood, a documentary that chronicles how the hemophilia community fought to protect the blood supply from HIV. What inspired you to make a documentary about this often ...

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Department of Health and Human Services Amends "Grandfathered" Regulation

November 17th, 2010 by Eboni Morris

As you may recall, the "grandfathered" rule in health care reform, was designed for individuals to keep their health plan while changes to the insurance market were implemented through newly created health plans.  Health plans that are designated as "grandfathered" ...

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Sigma Spectrum Infusion Pump Model 35700: Class 1 Recall: Risk of Over-Infusion

November 15th, 2010 by Katie Whittle

Link to Recall Audience: Risk Manager, Nursing Issue: FDA notified healthcare professionals of the class 1 recall of the SIGMA Spectrum Infusion Pump Model 35700.  These units may fail suddenly, causing inaccurate flow conditions during use, ranging from back ...

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Press Release: EEOC Issues Strong Final Rule Implementing GINA

November 9th, 2010 by Katie Whittle

Click here for official press release The Council for Responsible Genetics, a public interest organization, is hailing the Final Rule implementing the Genetic Information Nondiscrimination Act (GINA) released today by the Equal Employment Opportunity Commission (EEOC). In its Final Rule, the EEOC ...

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Advisory Committee on Blood Safety and Availability Announcement

November 8th, 2010 by Katie Whittle

ANNOUNCEMENT: The Advisory Committee on Blood Safety and Availability is meeting November 4-5, 2010. The first order of business for today's session was the swearing in of new members. NCHS is proud to announce that Ed Burke, Director of Advocacy and Outreach/Interstate ...

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