HFA News & Notes

HFA Observes National Hepatitis Awareness Month

HFA Observes National Hepatitis Awareness Month FOR IMMEDIATE RELEASE: May 3, 2012 Contact: Richard Pezzillo [...] Read More >>

Community Pharmacists Lose Bid to Immediately Block Express Scripts-Medco Deal

By Rebecca Adams, CQ HealthBeat Associate Editor A federal judge has denied the request of a group of community [...] Read More >>

People with Bleeding Disorders and HCV

Link to Access HCV Therapy Site Friends and supporters, We should all be enormously encouraged by the increasing [...] Read More >>

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Prese Relase: March is Hemophilia Awareness Month

March 12th, 2012 by Katie Whittle

Link to PDF of Hemophilia Awareness Month Press Release FOR IMMEDIATE RELEASE March 12, 2012 HFA Celebrates National Hemophilia Awareness Month March is Designated to Create Public Awareness about Bleeding Disorders Washington, D.C. – In 1986, President Ronald Regan designated the month of March as Hemophilia Awareness Month to bring awareness and attention to those living with a bleeding disorder.  Hemophilia Federation of America (HFA) along with chapter organizations across the country commemorates ...

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Press Release: HFA Recognizes Rare Disease Day

February 28th, 2012 by Katie Whittle

Link to PDF of Rare Disease Day Press Release Hemophilia Federation of America Recognizes Rare Disease Day February 29th, 2012 Marks the Fifth International Rare Disease Day Washington, D.C. – The Hemophilia Federation of America (HFA) will join the National Organization for Rare ...

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Insurers Now Required to Use Plain Language in Describing Health Plan Benefits, Coverage

February 24th, 2012 by Eboni Morris

New rules published jointly by the Departments of Health and Human Services, Labor and Treasury, require health insurers and group health plans to provide concise and comprehensible information about health plan benefits and coverage to the millions of Americans with ...

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HFA Receives $7,250 United Way Grant

February 16th, 2012 by Katie Whittle

Official Press Release Funding Will Help Support FitFactor Initiatives Washington, D.C. – The Hemophilia Federation of America (HFA) today announced that the United Way of The National Capital Area has issued a $7,250 grant to help support their FitFactor program in collaboration ...

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Pfizer’s Delivers New Dosage Strength Hemophilia B

February 16th, 2012 by Katie Whittle

Pfizer Hemophilia is pleased to announce that the 3000 IU dose of BeneFIX® is now available for hemophilia B patients. BeneFIX is a recombinant coagulation factor IX product indicated for the control, prevention and perioperative management of bleeding episodes in ...

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Prolor Reports Positive Results in Hemophilia Study

February 14th, 2012 by Katie Whittle

Link to Article The study found that the mice which received Factor VIIa-CTP showed a superior survival rate. Prolor Biotech Inc. (AMEX: PBTH; TASE: PBTH) today reported positive results in a comparative study of its longer-acting version of the hemophilia drug Factor ...

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Developments in Clinical Use of Plasma Therapies

February 14th, 2012 by Katie Whittle

Link to Website IPPC 2012 SPEAKERS TO ADDRESS DEVELOPMENTS IN CLINICAL USE OF PLASMA PROTEIN THERAPIES BRUSSELS, BELGIUM (February 14th, 2012) The International Plasma Protein Congress (IPPC) 2012 will take place on March 13-14 in Madrid, Spain at the Hotel Melia Princesa ...

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HCV/HIV Drug Safety Communication – Drug Interactions

February 9th, 2012 by Katie Whittle

Link to Official FDA Alert         Victrelis (boceprevir) and Ritonavir-Boosted Human Immunodeficiency Virus (HIV) Protease Inhibitor Drugs: Drug Safety Communication - Drug Interactions AUDIENCE: Infectious Disease, Pharmacy ISSUE: FDA notified healthcare professionals and patients that drug interactions between the hepatitis C virus ...

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HFA Press Release: New Staff

February 9th, 2012 by Katie Whittle

Link to PDF of New Staff Press Release HFA Office Welcomes New Additions to Staff Washington, D.C. – The Hemophilia Federation of America (HFA), is pleased to announce four new additions to their staff: Jane Cavanaugh Smith, Matthew Landseadel, Pat Brown, and ...

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Rare Disease Day

February 8th, 2012 by mlandseadel
Rare Disease Day February 29

Celebrate Rare Disease Day on February 29th 2012! HFA is a proud partner of NORD, the National Organization for Rare Disorders.

Recall of Crickit® Convenience Kits

February 7th, 2012 by Katie Whittle

Click here for FDA recall North American Rescue, LLC Announces A Follow-Up to the Recall of Crickit® Convenience Kits Because of Possible Health Risk Related to Nationwide Recall of Triad Povidone Iodine Prep Pads Contact: Consumer 1-888-689-6277, Monday through Friday, 8:00am to 5:00pm (ET) FOR ...

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WFH appoints John Bournas as new CEO/ ED

January 11th, 2012 by Katie Whittle

Click for link to WFH Montreal, Canada, January 10, 2012 — The World Federation of Hemophilia is pleased to announce the appointment of John Bournas as CEO/Executive Director. Mr Bournas brings over fifteen years of senior managerial experience in the healthcare ...

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U.S. Department of Health and Human Services releases Essential Health Benefits Bulletin

January 6th, 2012 by Eboni Morris

On Monday, Dec. 16, the U.S. Department of Health and Human Services (HHS) released a bulletin outlining guidance to states on implementing Essential Health Benefits (EHBs).  As you may recall, the Affordable Care Act will require individuals to have insurance ...

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