HFA News & Notes

HFA Observes National Hepatitis Awareness Month

HFA Observes National Hepatitis Awareness Month FOR IMMEDIATE RELEASE: May 3, 2012 Contact: Richard Pezzillo [...] Read More >>

Community Pharmacists Lose Bid to Immediately Block Express Scripts-Medco Deal

By Rebecca Adams, CQ HealthBeat Associate Editor A federal judge has denied the request of a group of community [...] Read More >>

People with Bleeding Disorders and HCV

Link to Access HCV Therapy Site Friends and supporters, We should all be enormously encouraged by the increasing [...] Read More >>

Contact Info

Hemophilia Federation of America
210 7th St. SE, Suite 200B
Washington D.C., 20003
800.230.9797
202.675.6984
202.675.6983

© 2011 Hemophilia Federation of America · Board of Directors Only · BB Admin Only · Privacy & Legal

News & Notes

Find more information about:
or search by other:

Wyeth Pharmaceuticals, Catalyst collaborating on hemophilia drug

July 20th, 2009 by sswindle

Tuesday, June 30, 2009, 11:36am EDT Wyeth Pharmaceuticals, Catalyst collaborating on hemophilia drug Philadelphia Business Journal Wyeth Pharmaceuticals said Tuesday that it has formed an exclusive worldwide collaboration with Catalyst Biosciences Inc. to develop treatments for hemophilia and other bleeding conditions. Collegeville, Pa.-based Wyeth Pharmaceuticals, a division of Wyeth (NYSE:WYE) said it will pay South San Francisco, Calif.-based Catalyst $21 million upfront. Total payments for research funding and milestones could exceed $500 million, the ...

(Keep Reading)

“Rosa sat so Martin could march, and Martin marched so Barack could run…”

July 17th, 2009 by crucedesign

As I was sitting in the lounge at National Airport in DC, I was going through old e-mails. I found one, with the title above, as the subject. It came from an old college friend. The e-mail’s point was an ...

(Keep Reading)

Senate HELP Committee approves health reform legislation

July 15th, 2009 by kcarter

On July 15, 2009, the Senate Health, Education, Labor and Pensions (HELP) Committee approved the Affordable Health Choices Act with a party-line vote of 13-10.  The legislation (in conjunction with the yet to be released Senate Finance legislation) will eventually ...

(Keep Reading)

America’s Affordable Health Choices Act of 2009

July 15th, 2009 by kcarter

On July 14, 2009 The House Tri-Committee’s introduced H.R. 3200, a 1018-page bill, nearly 200-pages more than the draft proposal released several weeks ago.   To read the bill or a summary, please visit the Committee on Ways and Means , ...

(Keep Reading)

PA Standards of Care bill advancing

July 10th, 2009 by crucedesign

Last week, the Pennsylvania House of Representatives’ Insurance Committee passed HB 620, The Hemophilia Standards of Care unanimously and without amendments. It is likely that the full House will consider the bill within the next several days.   As a national community ...

(Keep Reading)

Senator Chuck Grassley tells town hall meeting attendee “go work for the federal government” for affordable insurance

July 7th, 2009 by kcarter

During a town hall meeting, Senator Chuck Grassley (R-IA), ranking member of the Senate Finance Committee and member of the Senate Budget Committee tells an attendee to “go work for the federal government” to obtain health insurance similar to what ...

(Keep Reading)

What's your question?

June 29th, 2009 by kcarter

Obama wants to hear from you.  On Wednesday (July 1), Obama will answer questions submitted by people across the nation.  Do you have a question about health care reform?  Please submit your question (video, Facebook, Twitter, etc.) to the following link: http://www.whitehouse.gov/blog/A-National-Discussion-on-Health-Care-Reform/ KC

Congress wants to hear from you!

June 26th, 2009 by kcarter

Congress breaks for recess beginning Monday, June 29 thru Friday, July 3 2009.  They are back in their home stated during this time.  It's important that Congress hears from consumers.  The consumer perspective matters during such an important debate.  Decisions on ...

(Keep Reading)

Share Your Voice

June 26th, 2009 by crucedesign

The Voices Campaign is HFA’s grassroots advocacy initiative aimed at raising general public and legislator awareness of the bleeding disorders community through personal stories from affected individuals and their families.  In the approaching national debates regarding health care reform, HFA ...

(Keep Reading)

Press Release: HFA Voices Campaign Gaining Momentum

June 25th, 2009 by sswindle

June 25, 2009 Washington DC: Hemophilia Federation of America’s (HFA) grassroots “Voices Campaign” recently launched at the 2009 Educational Symposium in Indianapolis, IN is gaining momentum by collecting powerful stories from community members. “Now is the time for action.  As individuals and ...

(Keep Reading)

They Need to Hear From Us: Destiny

June 23rd, 2009 by crucedesign

I had the honor of going to Washington D.C to visit our Capital. It was everything you would image it would look like. It was a huge building looking statuesque amongst all the other buildings. Standing strong ...

(Keep Reading)

House Tri-Committees release a health care reform proposal

June 19th, 2009 by kcarter

Today, the House Ways and Means, Energy and Commerce, and Education and Labor Committees’ released an 850-page health care reform proposal.  To read a summary, please visit the House Committee on Ways and Means website.

Gulliver’s Redux

June 14th, 2009 by crucedesign

(Braintree, MA) Some days you just can’t help but feel as though you are a stranger in a strange land. Serving the bleeding disorders community as HFA’s Director of Public Policy for State Affairs means spending timing far flung corners of ...

(Keep Reading)