Families
HFA welcomes and embraces families affected by hemophilia, von Willebrand disease and other bleeding disorders. We provide education and support to the family unit and individually to parents, kids and extended family. From new parents with an infant to the school age years and scholarships to college, the HFA is there.
- New Families
- Educational Symposium
- School Advocacy
- Dads In Action
- Scholarships
- Share Your Voice
HELPFUL RESOURCE: www.wrightslaw.com This site is an extremely helpful resource for families, teachers and advocates working with children with disabilities.
Advocating for your child at school? A few tips:
1. Learn about and know your rights. 2. Develop and nurture partnerships with teachers, nurses and other caregivers. Most teachers and school administrators DO want to work with you and have the best interests of your child in mind! 3. Create an IEP, 504 Plan, Health Plan or other document outlining your child’s needs. 4. Identify resources who can assist you in planning for the special needs of your child, including legal resources, peer networks, your state board of education. 5. Remember your hard work is worth it. Never give up and don’t worry about being perfect.