HFA News & Notes

WFH appoints John Bournas as new CEO/ ED

Click for link to WFH Montreal, Canada, January 10, 2012 — The World Federation of Hemophilia is pleased to [...] Read More >>

U.S. Department of Health and Human Services releases Essential Health Benefits Bulletin

On Monday, Dec. 16, the U.S. Department of Health and Human Services (HHS) released a bulletin outlining guidance [...] Read More >>

BAXTER: PHASE I TRIAL OF LONGER-ACTING RECOMBINANT FVIII

Link to Baxter’s Press Release BAXTER INITIATES PHASE I CLINICAL TRIAL OF LONGER-ACTING RECOMBINANT FVIII [...] Read More >>

Contact Info

Hemophilia Federation of America
210 7th St. SE, Suite 200B
Washington D.C., 20003
800.230.9797
202.675.6984
202.675.6983

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Health Care Reform

Statement on Health Care Reform

 

The Hemophilia Federation of America (HFA) strongly supports healthcare reform to ensure individuals affected by bleeding disorders have access to a healthcare system that provides high-quality, affordable, comprehensive and preventative health care services to all.   The current system is both costly and inefficient, and does not provide care to all, particularly those with the greatest need.  We believe Americans deserve a better health care system and that includes Americans with bleeding disorders!

HFA seeks to ensure the needs of the bleeding disorders community, in partnership with the broader rare disease community, is considered in any health reform discussion.  The voices of the rare disease community must be heard and recognized during the health care reform debate!

HFA has been working with the rare disease community to develop health care reform principles in response to health care reform and are actively reaching out to congress and the administration to ensure our needs have the opportunity to be addressed.

For further details on this collaborative effort: