HFA FAQs

Who makes up the HFA?

The HFA employs a grassroots community model to bring together member organizations dedicated to serving consumers and families with bleeding disorders.  Each HFA member organization has a representative on the HFA Board of Directors to ensure federation members participate in decision making and setting the organization’s direction.  Several independent members also sit on the HFA board.  Collectively, the Board sets the HFA’s policies, priorities, and objectives.  The HFA staff then ensures those objectives are met and the mission is served.  

Most importantly, the HFA is made up of dedicated volunteers, individual members, and friends who believe in the importance of advocating for the bleeding disorders community and having their Voices heard.

How is HFA different from NHF?

As a grassroots community organization, the HFA is focused exclusively on the consumer community of patients and their families.  Each member organization has a voice and a vote as to the future and direction of the organization and its mission.

What Programs does HFA offer?

The HFA offers a wide range of programs for consumers of all ages.  For a complete listing and description of all HFA programs, please click here

How does your local organization become a member of the HFA?

If your local/state organization is interested in becoming a member organization of the HFA, please contact: info@hemophiliafed.org for details and information.

How do you become an individual member of the HFA?

It is easy. Click here to join!