Privacy & Social Media Statements
Last Revised 4-1-2011
HFA PRIVACY STATEMENT
Purpose:
This privacy statement discloses the privacy practices for HEMOPHILIA FEDERATION OF AMERICA (HFA) for those persons who visit the HFA website, www.hemophiliafed.org. The HFA Privacy Statement applies solely to the HFA website. The goal of HFA is to a secure the privacy of users of the website. HFA is dedicated to protecting your privacy and ensuring your ability to use our site with confidence.
Information Collection and Usage:
Submission of personal information on the HFA website is optional. Users can visit the website without revealing any information about themselves. HFA is the sole owner of the information collected on this website. HFA will not sell, share, or rent this information to others in ways different from what is disclosed in this statement. HFA collects information from our users at several different points on the website. If one chooses to provide personal information for the purposes of correspondence, or registration for an HFA event, program or service and the like, this privacy statement discloses our use of that information and your consent thereto by use of the HFA website.
Cookies:
This site makes use of Internet Technology known as “cookies”. A cookie is a small data file that can contain information such as a user identification that the site uses to track the pages you have visited. However, the only personal information a cookie can contain is that which you supply. Any material or information which you supply, transmit or post on this website, by any means, will be treated as non-confidential and non-proprietary, with the exception of Credit Card information which is transmitted via encrypted methods to protect privacy. Credit Card information remains confidential. The HFA website contains registration forms which require users to provide contact information, such as name and email address, and demographic information, such as address and zip code. HFA uses this registration and contact information to send the HFA newsletter and other HFA publications in furtherance of the HFA mission and vision statements. This information you supply is used as part of the HFA database and mailing list.
If you do not wish to be included on the HFA database and mailing list, you will have the opportunity to designate such on the forms you submit online to HFA. Users may opt-out of receiving future contact, publications, mailings and other communications from HFA at any time by notifying the HFA headquarters via the contact information contained on the HFA website.
Outside Links:
The HFA website contains links to other websites. HFA is not responsible for any information posted on any of these other websites and HFA is not responsible for the privacy practices of other websites. Once one leaves the HFA website it is strongly advised that the privacy statements of those outside websites be read prior to viewing. The HFA privacy statement applies solely to the HFA website.
Notification of Changes:
Any changes to the HFA privacy statement HFA collection and use of information policy will be disclosed on this Privacy Statement page. HFA will use information in accordance with the Privacy Statement in effect at the time the information was collected.
User Agreement:
The use and viewing of the HFA website constitutes an agreement that you accept the provisions of this HFA privacy statement and agree to abide by all of the terms and conditions contained herein. If you do not agree with the terms and conditions of this HFA Privacy Statement, you are not authorized to use or view the HFA website.
HFA SOCIAL MEDIA / ONLINE COMMUNITY GUIDELINES
The Hemophilia Federation of America (HFA) is delighted to provide and maintain our social media sites and blogs (Including but not limited to Facebook, Twitter, YouTube, Vimeo, and HFA blogs). HFA operates and maintains its social networking sites as a community service to share information about issues, events, HFA programs and services that pertain to the bleeding disorders community.
The material provided in HFA Publications, Social Media and Online Communities/Forums is provided for general purposes only. HFA does not give medical advice or engage in the practice of medicine and recommends that you consult your physician or local treatment center before beginning any form of treatment.
The ideas, opinions, views and actions shared in comments on HFA’s Social Media sites are those of the author and do not necessarily reflect the policies or positions of the Hemophilia Federation of America. HFA encourages those in the bleeding disorders community to discuss/interact/share with each other in a respectful way.
Please consider these guidelines before commenting/posting on HFA social media sites/blogs:
Be Respectful. Think before you post. It is ok to disagree but please keep your comments appropriate.
No Soliciting or Advertising. HFA’s social media sites are for community members to connect and share and there shall be no unapproved advertising or soliciting of business, advertising or otherwise allowed on these sites.
Protect Your Privacy. Comments made on any of HFA’s social media sites are visible to the general public. Protect yourself by not providing any personal information that you do not want public.
HFA’s goal is to provide a comfortable, safe online environment where people with various backgrounds, viewpoints, and experiences can interact. HFA staff moderates HFA’s social media sites and blogs. At all times, HFA reserves, in its sole and final discretion, the right to remove any comments/posts/links which are unrelated, inappropriate, of poor taste or for whatever reason HFA decides.
Use of the HFA’s website and related social media sites constitutes an agreement to abide by the HFA Privacy Statement and other rules found on the HFA website as well as the Privacy Statements and Rules of the various social media sites used via HFA. The user agrees to abide by all copyright and trademark rules and laws applicable to the use of the HFA website, social media sites and other media incorporated or used herein.