Priorities
Our intent as a grassroots organization is to provide the information and tools needed for individuals with bleeding disorders and their families to participate in monitoring, advocating, and supporting federal and state public policies that impact the lives of people with bleeding disorders.
Access
Goal: Affordable access to providers, treatments and products for the most efficient and effective treatment of bleeding disorders.
Safe Therapies
Goal: Access to accurate information and a voice in holding manufacturers and the federal government accountable for providing safe therapies. (Learn more)>
Data Collection
Goal: Data must provide the foundation for improved and accurate public understanding of bleeding disorders, decision-making by providers and payers, and improved care for patients. This process must include individuals with bleeding disorders and thier families. (Learn more)>
Patient Protection and Affordable Care Act (PPACA)
Goal: Implementation of the PPACA should provide every American, especially individuals with a bleeding disorder access to a health care system that is high-quality, affordable and comprehensive. (Learn More)>