HFA News & Notes

HFA Observes National Hepatitis Awareness Month

HFA Observes National Hepatitis Awareness Month FOR IMMEDIATE RELEASE: May 3, 2012 Contact: Richard Pezzillo [...] Read More >>

Community Pharmacists Lose Bid to Immediately Block Express Scripts-Medco Deal

By Rebecca Adams, CQ HealthBeat Associate Editor A federal judge has denied the request of a group of community [...] Read More >>

People with Bleeding Disorders and HCV

Link to Access HCV Therapy Site Friends and supporters, We should all be enormously encouraged by the increasing [...] Read More >>

Contact Info

Hemophilia Federation of America
210 7th St. SE, Suite 200B
Washington D.C., 20003
800.230.9797
202.675.6984
202.675.6983

© 2011 Hemophilia Federation of America · Board of Directors Only · BB Admin Only · Privacy & Legal

Students for the Awareness of Bleeding Disorders

HFA is proud to offer the following pages on behalf of an emerging young adult leadership group in the Washington DC area.

About Us

S.A.B.D.’s core mission is to lend an innovative youth voice to issues concerning the bleeding disorder community.  S.A.B.D. focuses on identifying critical policy items—on both a state and federal level—and then working to influence decisions on relevant legislation.

S.A.B.D. is a small group of young advocates committed to the bleeding disorder community.  Since its formation in early 2009 amongst peers in a Georgetown University science policy course, this work has expanded far beyond the classroom setting.  The group interacts regularly with Congressional staff on Capitol Hill and with leaders in national bleeding disorder advocacy groups.

Projects

S.A.B.D. achieved its first major success by arranging for the introduction of H.Con.Res.147 to the U.S. House of Representatives in June of 2009.

More recently, S.A.B.D. has developed H.R. 4846, “The Bleeding Disorders Screening, Awareness, and Further Education (SAFE) Act of 2010.”  On March 15, 2010, Congresswoman Carolyn McCarthy introduced the SAFE Act to the House of Representatives.  If passed, this bill would address facilitate bleeding disorder screening and physician awareness programs.  Please see the Action Alert for more information and to support the legislation.

In the News

Contact

For further information on Students for the Awareness of Bleeding Disorders, or to become involved, contact Derick Stace-Naughton at djs83@georgetown.edu.About Us

S.A.B.D.’s core mission is to lend an innovative youth voice to issues concerning the bleeding disorder community.  S.A.B.D. focuses on identifying critical policy items—on both a state and federal level—and then working to influence decisions on relevant legislation.

S.A.B.D. is a small group of young advocates committed to the bleeding disorder community.  Since its formation in early 2009 amongst peers in a Georgetown University science policy course, this work has expanded far beyond the classroom setting.  The group interacts regularly with Congressional staff on Capitol Hill and with leaders in national bleeding disorder advocacy groups.

Projects

S.A.B.D. achieved its first major success by arranging for the introduction of H.Con.Res.147 to the U.S. House of Representatives in June of 2009.

More recently, S.A.B.D. has developed H.R. 4846, “The Bleeding Disorders Screening, Awareness, and Further Education (SAFE) Act of 2010.”  On March 15, 2010, Congresswoman Carolyn McCarthy introduced the SAFE Act to the House of Representatives.  If passed, this bill would address facilitate bleeding disorder screening and physician awareness programs.  Please see the Action Alert for more information and to support the legislation.

In the News

Contact

For further information on Students for the Awareness of Bleeding Disorders, or to become involved, contact Derick Stace-Naughton at djs83@georgetown.edu.About Us

S.A.B.D.’s core mission is to lend an innovative youth voice to issues concerning the bleeding disorder community.  S.A.B.D. focuses on identifying critical policy items—on both a state and federal level—and then working to influence decisions on relevant legislation.

S.A.B.D. is a small group of young advocates committed to the bleeding disorder community.  Since its formation in early 2009 amongst peers in a Georgetown University science policy course, this work has expanded far beyond the classroom setting.  The group interacts regularly with Congressional staff on Capitol Hill and with leaders in national bleeding disorder advocacy groups.

Projects

S.A.B.D. achieved its first major success by arranging for the introduction of H.Con.Res.147 to the U.S. House of Representatives in June of 2009.

More recently, S.A.B.D. has developed H.R. 4846, “The Bleeding Disorders Screening, Awareness, and Further Education (SAFE) Act of 2010.”  On March 15, 2010, Congresswoman Carolyn McCarthy introduced the SAFE Act to the House of Representatives.  If passed, this bill would address facilitate bleeding disorder screening and physician awareness programs.  Please see the Action Alert for more information and to support the legislation.

In the News

Contact

For further information on Students for the Awareness of Bleeding Disorders, or to become involved, contact Derick Stace-Naughton at djs83@georgetown.edu.