“It is the best pill in my bag, the best friends I could have, the healthiest thing to come my way in a while.” A Blood Brother (2009)
What Blood Brothers Are Saying About Blood Brotherhood
http://voices.hemophiliafed.org/
The Blood Brotherhood is the HFA’s flagship program for adult men with hemophilia and von Willebrand. Designed to be a multi-avenue outreach to provide education, social support and a sense of community, the program reaches men with hemophilia in three ways.
- Online forum: http://hemophiliafed.net/hfabb/
- Face-to-face local Blood Brotherhood Meetings
- National Blood Brotherhood Call/Webinars
HFA’s Blood Brotherhood online forum is an internet message board for adult men only. The forum boasts of nearly 200 members discussing hundreds of topics. From co-infection to motor sports, the Blood Brotherhood forum provides the opportunity for men with hemophilia to connect, share, support, and just laugh. To become part of the Brotherhood, visit http://hemophiliafed.net/hfabb/ to register and get connected!
The second component of the Blood Brotherhood centers on pilot sites that offer regular, group meetings. Much like the Blood Brotherhood forum, these pilot site meetings bring Blood Brothers together to connect and learn. Topic expert speakers and activities are presented that address a variety of health and wellness issues. If you are interested in joining a pilot site group or your local hemophilia organization would like to become a HFA Blood Brotherhood pilot site, contact us at programs@hemophiliafed.org.
The final component of the Blood Brotherhood program is the regularly scheduled National Phone/Webinar meetings. Topic experts provide education and facilitate discussion and Q&A around key topics that Blood Brotherhood members are asking about such as financial health, retirement planning, joint replacements, etc. For more information or to be added to this meeting list, please contact programs@hemophiliafed.org.
The Blood Brotherhood Program is supported by Cooperative Agreement Number 1U27DD000537-01 from CDC. The contents on this webpage are solely the responsibility of the authors and do not necessarily represent the official views of the CDC.
