HFA News & Notes

WFH appoints John Bournas as new CEO/ ED

Click for link to WFH Montreal, Canada, January 10, 2012 — The World Federation of Hemophilia is pleased to [...] Read More >>

U.S. Department of Health and Human Services releases Essential Health Benefits Bulletin

On Monday, Dec. 16, the U.S. Department of Health and Human Services (HHS) released a bulletin outlining guidance [...] Read More >>

BAXTER: PHASE I TRIAL OF LONGER-ACTING RECOMBINANT FVIII

Link to Baxter’s Press Release BAXTER INITIATES PHASE I CLINICAL TRIAL OF LONGER-ACTING RECOMBINANT FVIII [...] Read More >>

Contact Info

Hemophilia Federation of America
210 7th St. SE, Suite 200B
Washington D.C., 20003
800.230.9797
202.675.6984
202.675.6983

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Documentary

Bad Blood: A Cautionary Tale

 

Bad Blood on PBS starting June 2nd, 2011.

Click here for your local PBS air times.

http://badblooddocumentary.com/

An Evening to Remember, Recognize, and Reform…

The gay rights and hemophilia communities build a bridge

and jointly host a multi-city screening series of the

new documentary film “Bad Blood: A Cautionary Tale”

New York, NY (July 21, 2010) – “Bad Blood: A Cautionary Tale”, directed by Marilyn Ness, a documentary ten years in the making, will premiere next week in New York City as the launch of a multi-city theatrical screening series co-hosted by a coalition of national gay rights and hemophilia advocacy groups including Gay Men’s Health Crisis (GMHC), Committee of Ten Thousand (COTT), Hemophilia Federation of America (HFA), National Hemophilia Foundation (NHF), and World Federation of Hemophilia (WFH). The film documents the tragic history and facts surrounding the discovery of HIV in the U.S. blood supply in the early days of the AIDS epidemic. On the heels of the Health and Human Services (HHS) Blood Committee’s vote last month to recommend research and review of the FDA’s longstanding deferral of all men who have had sex with another man (MSM) from donating blood, the two communities invested in reform find common ground through the shared history featured in “Bad Blood”.

Full Press Release

To support the film: http://badblooddocumentary.com/get-involved

Get Involved: Hemophilia Federation of America is a grassroots community organization that evolved out of the crisis depicted in this film.  We believe education, community outreach and support are critical to our community and we continue to assist and advocate for those with bleeding disorders. Having a historical perspective of our community offers each of us the opportunity to become better advocates.

To support HFA: http://hemophiliafed.org/contact-us/donate/

Hemophilia Federation of America encourages YOU to be an advocate and champion issues that are important to you!  Please get involved and Visit our website for Advocacy, Blogs, Personal Stories, and become an HFA Fan on Facebook.  Help us and be a part of making positive change for the future.