Helpful Links
Bleeding Disorders
- Committee of Ten Thousand
- Center for Disease Control
- Hemophilia Treatment Centers
- Universal Data Collection System
- National Hemophilia Foundation
- World Hemophilia Federation
- HFA Member Organizations
- Search for a Hemophilia Treatment Center
- The Coalition for Hemophilia B
- LA Kelly Communications
- Sweet Affliction
- Inalex Communications
Health
- Office of Consumer Information and Insurance Oversight (Health Care Reform)
- Families USA
- Kaiser Family Foundation (KFF)
- KFF: The Process of Health Care Reform Legislation
- Advocacy for Patients with Chronic Illness, Inc.
- The Commonwealth Fund
- Heritage Foundation’s Center for Health Policy Studies
- The Brookings Institution’s Engleberg Center for Health Care Reform
- The Health Policy Institute at Georgetown University ihcrp.georgetown.edu
- Community Catalyst
- Alliance for Health Reform
- Coalition for Health Services Research
- National Academy for State Health Policy
- Inside Health Policy
- Center for Medicare Advocacy, Inc.
- National Organization for Rare Disorders
- Coalition for Genetic Fairness
- Immediate Health Care Reforms
Economy
- U.S. Bureau of Labor Statistics
- U.S. Department of Commerce
- National Conference of State Legislatures
- Center on Budget and Policy Priorities
- The Washington Post
- American Recovery and Reinvestment Act
Congress
- Congressional Budget Office
- Senate Finance Committee
- Senate Health, Education, Labor, Pensions Committee
- House Ways and Means Committee
- House Energy and Commerce Committee
State
- Legal Battles of Health Care Reform
- State Insurance Commissioners
- National Association of Insurance Commissioners
- HHS or State Run High Risk Pools
- Solicitation for State Proposals to Operate Qualified High Risk Pools
- Health Care Reform – Market Reforms – Provisions and Timeline
- Insurance Commissioners’ Health Reform Timeline
- National Governors Association
- Health Reform Implementation Timeline – Working Document
- National Academy for State Health Policy
- National Conference of State Legislatures
- National Governers association-Health Care Reform
- NCSL Health Care Reform Webinars
- State Lawsuits
- Stateline News – Health Care Reform
Other
Family Advocacy
- Wright’s Law – This site is an extremely helpful resource for families, teachers and advocates working with children with disabilities.
Please assist us in keeping this list up to date. If you find a discrepancy, please contact us at info@hemophiliafed.org