Advocacy In Action

The Hemophilia Federation works to ensure that all hemophilia patients, in consultation with their doctors, have ready access to the choice of clotting product, the choice of treatment regimen, and the choice of provider to ensure the most effective and efficient treatment of hemophilia induced bleeding and attendant conditions.

Throughout the last half-century, market driven competition has ensured a consumer centric health care model. This model involves collaboration among medical, home care and specialty pharmacy providers which facilitate comprehensive health care and services to people with bleeding disorders respective of the physical and psychosocial implications of the illness.

The freedom to choose a health care provider has enabled consumers to determine the adequacy and quality of care necessary to respond to one’s individual needs. This choice has also forced home health and specialty pharmacy providers to offer competitive prices, as well as complete assay ranges for efficient hemostasis, ancillary supplies, and availability of all products 24 hour customer service with next day delivery. Additionally, these providers help support community based, educational programming that includes camp, federal, state, and local advocacy and numerous other resources relied upon by the bleeding disorders community across the United States.

The HFA has provided you a letter that can be used in your grassroots advocacy effort of opposing single source provider arrangements. Download sample letter now »


State Contacts Department
http://www.statelocalgov.net/

Health Department Contacts
http://www.statelocalgov.net/50states-health.cfm

States with High Risk Pools
http://www.naschip.org/states_pools.htm

Social Security Online
http://www.ssa.gov/work/ResourcesToolkit/redbook.html

Department of Labor
http://www.dol.gov/ebsa/consumer_info_health.html#section8

NAIC - State Insurance Contacts
http://www.naic.org/state_web_map.htm

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