People with hemophilia have been on a wild ride. Our parents were told we wouldn’t survive. We lived on hope and determination. As treatment improved, life got better, but the uncertainty persisted. In the 80’s a new threat emerged, and renewed our uncertainty. More new treatments, more hope, same determination.

Today, the life expectancy for someone with hemophilia is roughly the same as anyone else.

Hope and determination got us this far, but we’re now suddenly facing issues most of us are totally unprepared for, like co-infection, AARP membership, relating to Andy Rooney, and having children who are older than our doctor.

Many guys with bleeding disorders have become disconnected from the community. They don’t go to treatment centers, and have trouble finding people who understand their problems. They need to connect with others who have been where they are—people who can share their experiences, suggest a coping skill, or just crack a joke.

The Blood Brotherhood Program provides opportunities for men with bleeding disorders to get together both in person and online to discuss their issues with each other and with caring professionals. Our online forum covers everything from meds to motor sports, surviving to “Survivor.”

To become a part of the Brotherhood please visit hemophiliafed.net/hfabb and join in our discussions and learn from our continually changing list of resources!

As a new member, simply click “register” and you can begin to be a part of the Brotherhood.

For additional resources and information and programs for the whole family, you can also contact the HFA directly.