Community News
A Tribute to Dr. Robert Janco
Disease Area Lead, Pfizer Hematology
Trusted colleague, outstanding clinician and friend of the hemophilia community, Dr. Robert “Bob” Janco passed away on March 9 after a short but aggressive illness. Bob had a wealth of experience in the diagnosis and clinical management of adults and children with congenital bleeding disorders. He most …
HFA Press Release: Facebook Fans Bring Community Friends Together
FOR IMMEDIATE RELEASE:
Wednesday, March 10, 2010
Washington, D.C.: There is no doubt that the social media trend has changed how the world communicates. From world events and tragedies to simply linking people together in a personal day-to-day style, social forums like Facebook have made an impact. At the Hemophilia Federation of …
Infusion Set Needles [Manufactured by Nipro for Exelint]: Recall
Exel/Exelint Huber needles,
Exel/Exelint Huber Infusion Sets
Exel/Exelint “Securetouch+” Safety Huber Infusion Sets
Audience: Hospital Risk Managers, Surgical Service personnel
FDA notified healthcare professionals of a Class I recall of Exel/Exelint Huber needles, Exel/Exelint Huber Infusion Sets and Exel/Exelint “Securetouch+” Safety Huber Infusion Sets, manufactured by Nipro …
340B Prime Vendor Program, managed by Apexus, and the Hemophilia Alliance announced today an innovative collaborative effort to assist participating federally funded hemophilia treatment centers.
IRVING, Texas/ Lansdale, Pa (January 14, 2010) – The 340B Prime Vendor Program, managed by Apexus, and the Hemophilia Alliance announced today an innovative collaborative effort to assist participating federally funded hemophilia treatment centers in maximizing the benefits of 340B Drug Pricing Program and Prime Vendor Program discounts. The …
Octapharma Receives Orphan Drug Exclusivity Approval for wilate(R …
Octapharma Receives Orphan Drug Exclusivity Approval for wilate(R …
FOXBusiness
“Orphan drug exclusivity confirms Octapharma’s decision to focus exclusively on the treatment of von Willebrand patients. Wilate has a combination of two …
Octapharma Receives Orphan Drug Exclusivity Approval for wilate(R ……
Bayer is now accepting internship applications for the 2010 Bayer Hemophilia Leadership Development Program
The Bayer Hemophilia Leadership Development Program was developed with input from several members of the hemophilia community who saw a need for a program to develop future leaders in the bleeding disorders community. With their support, Bayer HealthCare Pharmaceuticals created an eight-week, paid summer internship at Bayer HealthCare’s U.S. Headquarters …
Press Release: HFA Voices Blood Safety Concerns
FOR IMMEDIATE RELEASE: December 10, 2009
Washington, DC: The Hemophilia Federation of America (HFA) expresses its concern regarding the ongoing labor issues involving the Teamsters Local 929 and the American Red Cross of Pennsylvania /New Jersey. The national blood system depends on skilled workers to provide clean, safe blood to laboratories. …
Press Release: HFA Recently Approved for NORD Membership
FOR IMMEDIATE RELEASE: December 10, 2009
Washington, DC: The National Organization for Rare Disorders (NORD) recently approved the Hemophilia Federation of America (HFA)for membership. One of 150 member organizations, the HFA is excited about the opportunity to participate with NORD on important public policy, advocacy, awareness and educational issues. Certain standards and …
Community member Corey Dubin cited in the New York Times regarding blood plasma
Community Member Corey Dubin is cited in the NY Times regarding blood plasma
The WFH receives the largest humanitarian aid donation in its history
NEWS RELEASE:
Donation represents more than 40 million international units to the WFH
(Montreal, December 2, 2009): As part of its continued commitment to hemophilia care around the world, Wyeth, now a part of Pfizer, has pledged more than 40 million international units (IUs) of factor concentrates to the World Federation …
