Hemophilia Federation of America: Assisting and Advocating for the Bleeding Disorders Community

Community News

New York City Hemophilia Chapter

Print This Post Print This Post Posted on: August 11th, 2010 by sswindle | Leave a comment

Click here For the Immediate Release 

New York City Hemophilia Chapter Names Glenn Mones Director of Communications

New York, NY – August 10, 2010 – The New York City Hemophilia Chapter (NYCHC) has appointed Glenn Mones to the position of Director of Communications, according to chapter President Shari Bender. “We’re thrilled …

HFA Adds New Blood Brotherhood Sites

Print This Post Print This Post Posted on: August 10th, 2010 by sswindle | Leave a comment

FOR IMMEDIATE RELEASE:

Monday, August 9, 2010

 Washington, DC: The Hemophilia Federation of America (HFA) is pleased to announce the addition of two new Blood Brotherhood sites, Hemophilia Foundation of Northern California (HFNC) and Hemophilia Foundation of Minnesota/Dakotas (HFMD). Other states hosting local community support groups include Tennessee, Texas, North Carolina, Arizona, …

Hemophilia survivor Leeroy Carter turns 90

Print This Post Print This Post Posted on: July 22nd, 2010 by sswindle | Leave a comment

BY JOSHUA JAMERSON
FREE PRESS SPECIAL WRITER

Posted July 21, 2010

Leeroy Carter is a rare longtime survivor of hemophilia, a bleeding disorder that often shortens the life of those who have it. But the Highland Park resident has far surpassed his peers, becoming the oldest hemophilic in …

Winners announced for 2010 BioRx Educational Scholarships

Print This Post Print This Post Posted on: July 21st, 2010 by sswindle | Leave a comment

News Release                       

June 21, 2010 (Cincinnati, Ohio)   BioRx, a specialty pharmacy, and Hemophilia of North Carolina, a non-profit organization that assists and educates persons affected by bleeding disorders, announce the winners of the 2010 BioRx Educational Scholarships.  Each of the winners receives a $2,000 …

American Plasma Users Coalition, A-PLUS, Seeks FDA-Community Research Agenda to Enhance The Safety of Our Nation’s Blood Supply

Print This Post Print This Post Posted on: June 9th, 2010 by sswindle | Leave a comment

The Department of Health and Human Services, Advisory Committee on Blood Safety and Availability will be reviewing the current Food and Drug Administration (FDA) policy recommending that men wh have sex with another man (MSM) even one time since 1977 should be deferred indefinitely from donating blood. Click here

Joint Statement on Addressing the MSM Blood Ban by Groups Representing People Living with Hemophilia, Gay Men and People Living with HIV/AIDS

Print This Post Print This Post Posted on: June 9th, 2010 by sswindle | Leave a comment

The Department of  Health & Human Services, Advisory Committee on Blood Safety and Availability will be reviewing the current Food and Drug Administration (FDA) policy recommending that men who have sex with another man (MSM) even one time since 1977 should be deferred indefinitely from donating blood.  Click here for

Barry Haarde reaches out through ministry & exercise

Print This Post Print This Post Posted on: June 3rd, 2010 by Gina Dochnahl | Leave a comment

Bleeding Disorder Community member Barry Haarde reaches out through ministry and exercise. For more information click here

Hemophilia Alliance Donation

Print This Post Print This Post Posted on: June 3rd, 2010 by Gina Dochnahl | Leave a comment

The Hemophilia Alliance has just completed the 2010 funding cycle, again this year they have donated in excess of $300,000 to the hemophilia community.

Alliance Foundation pdf

May is National Hepatitis Month

Print This Post Print This Post Posted on: May 10th, 2010 by sswindle | Leave a comment

May is National Hepatitis Month

Earlier this year the Institute of Medicine (IOM) released a report on Viral Hepatitis in the United States and called for efforts to increase knowledge and awareness of this major public health problem. During the month of May, CDC and our public health partners …

Access to Coverage for Young Adults

Print This Post Print This Post Posted on: April 30th, 2010 by sswindle | Leave a comment

Posted April 29, 2010

By Jenny Backus, Acting Assistant Secretary for Public Affairs

Young adults often have a hard time getting affordable health insurance.  Some go into jobs that don’t offer health benefits, some can’t afford it, and some are denied it because they have a …