New York City Hemophilia Chapter Names Glenn Mones Director of Communications

New York, NY – August 10, 2010 – The New York City Hemophilia Chapter (NYCHC) has appointed Glenn Mones to the position of Director of Communications, according to chapter President Shari Bender. “We’re thrilled to have Glenn as the newest member of our professional team,” Bender said. “Glenn’s extensive knowledge and experience will really help the chapter achieve its goals and mission,” Bender said.

Please Contact:   Melissa Penn   (212) 877-0280  melissa.penn@nyhemophilia.org

Monday, August 9, 2010

 Washington, DC: The Hemophilia Federation of America (HFA) is pleased to announce the addition of two new Blood Brotherhood sites, Hemophilia Foundation of Northern California (HFNC) and Hemophilia Foundation of Minnesota/Dakotas (HFMD). Other states hosting local community support groups include Tennessee, Texas, North Carolina, Arizona, New York, Illinois, Indiana, Oregon and Maryland. Click Here for the Press Release

Posted July 21, 2010

Leeroy Carter is a rare longtime survivor of hemophilia, a bleeding disorder that often shortens the life of those who have it. But the Highland Park resident has far surpassed his peers, becoming the oldest hemophilic in Michigan and the second oldest in the country — by two months. Click here for a link to the Free Press article. 

June 21, 2010 (Cincinnati, Ohio)   BioRx, a specialty pharmacy, and Hemophilia of North Carolina, a non-profit organization that assists and educates persons affected by bleeding disorders, announce the winners of the 2010 BioRx Educational Scholarships.  Each of the winners receives a $2,000 scholarship.  The scholarships are funded by BioRx through an educational grant, which is administered by Hemophilia of NC, a chapter of the National Hemophilia Foundation. 

 The recipients of the 2010 BioRx Educational Scholarship Awards are:

• Catherine Barton, Virginia Beach, VA
• Kelsey Kuehner, Grove City, OH
• Ethan Maurice, Phoenix, AZ
• Marwa Soliman, Buffalo, NY

 Established in 2004, the BioRx Educational Scholarships are intended for anyone in the country living with a bleeding disorder, including caregivers of children affected with bleeding disorders, a person who has been diagnosed with a bleeding disorder, or a sibling of a person diagnosed with a bleeding disorder.  Each year, four individuals are selected to receive a $2,000 scholarship toward their education.  While the scholarships are available to anyone with a bleeding disorder, preference is given to applicants who are working toward completing coursework in a healthcare related field at accredited colleges or certified training programs.

Catherine will attend Christopher Newport University, majoring in Pre-Pharmacy, and Kelsey is pursuing a Nursing degree at Wright State University.  Ethan is a student at Northern Arizona University, majoring in Exercise Science or Geology, and Marwa is studying Nursing at Trocare College.

For more information on the BioRx Educational Scholarships or to obtain an application for the 2011 scholarships, please contact Chris Barnes at Biorx, cbarnes@biorx.net or 919.749.3196, or visit the BioRx website at www.biorx.net/hemo_scholarships.php

About BioRx
Based in Cincinnati Ohio, BioRx is a national pharmacy specializing in highly customized care for the bleeding disorders community.  As one of the nation’s fastest growing providers of hemophilia clotting factors and other specialty pharmaceuticals the company’s clinical staff reaches patients and physicians in 50 states.  To learn more about BioRx and its products and services visit www.biorx.net.

About Hemophilia of North Carolina

Hemophilia of North Carolina is a non-profit organization whose goal is to assist, involve and educate persons affected by bleeding disorders and to educate the medical community and the public about bleeding disorders.  Hemophilia of North Carolina was formed in the 1970s by a diverse group of parents, patients, spouses, health care professionals and others with an interest in promoting awareness, providing support and disseminating information to the community. Today HNC has over 400 members and provides services and support to all persons with bleeding disorders.

Press Contact:  Judith Cline, 513/382-5409; email jcline@biorx.net

### ]]> http://hemophiliafed.org/2010/07/21/winners-announced-for-2010-biorx-educational-scholarships/feed/ 0 http://hemophiliafed.org/2010/06/09/american-plasma-users-coalition-a-plus-seeks-fda-community-research-agenda-to-enhance-the-safety-of-our-nations-blood-supply/ http://hemophiliafed.org/2010/06/09/american-plasma-users-coalition-a-plus-seeks-fda-community-research-agenda-to-enhance-the-safety-of-our-nations-blood-supply/#comments Wed, 09 Jun 2010 20:33:42 +0000 sswindle http://hemophiliafed.org/?p=6398 The Department of Health and Human Services, Advisory Committee on Blood Safety and Availability will be reviewing the current Food and Drug Administration (FDA) policy recommending that men wh have sex with another man (MSM) even one time since 1977 should be deferred indefinitely from donating blood. Click here for the Release

Alliance Foundation pdf

Earlier this year the Institute of Medicine (IOM) released a report on Viral Hepatitis in the United States and called for efforts to increase knowledge and awareness of this major public health problem. During the month of May, CDC and our public health partners are celebrating the 15th anniversary of National Hepatitis Awareness Month and, on May 19th, World Hepatitis Day.
These observances are intended to increase awareness about the large but often under-recognized burden of disease and premature death associated with viral hepatitis. An estimated 4.5 million Americans have chronic Hepatitis B or Hepatitis C, which together account for the major cause of chronic liver disease and liver cancer.