Community News
Access to Coverage for Young Adults
Posted April 29, 2010
By Jenny Backus, Acting Assistant Secretary for Public Affairs
Young adults often have a hard time getting affordable health insurance. Some go into jobs that don’t offer health benefits, some can’t afford it, and some are denied it because they have a …
Today is the 20th anniversary of the death of Ryan White
Community member archivist, Barry Haarde has a wonderful collection of community historical news. He has been distributing the information via “archieve e-newsletter. The HFA would like to acknowledge and thank Barry for allowing us to share with the greater community his post today, honoring the anniversary of the death of Ryan White:
Today is the 20th anniversary of …
Deadly blood colors debate
By Andrew Zajac
April 4, 2010
A woman who watched her husband die of AIDS after receiving a tainted donation and who now has the disease herself is torn over gay rights versus blood supply safety.
Reporting from Washington – As a liberal-minded person, Kathy …
Potential Risk to Blood Supply Probed
APRIL 4, 2010, 10:27 P.M. ET
XMRV Virus Gets Attention of Health Officials, but It’s Unclear if There Is Any Danger
An infectious virus linked to two diseases is drawing the attention of public-health officials, who are investigating the potential threat to the nation’s blood supply.
It isn’t clear if the virus, known …
A Tribute to Dr. Robert Janco
Disease Area Lead, Pfizer Hematology
Trusted colleague, outstanding clinician and friend of the hemophilia community, Dr. Robert “Bob” Janco passed away on March 9 after a short but aggressive illness. Bob had a wealth of experience in the diagnosis and clinical management of adults and children with congenital bleeding disorders. He most …
HFA Press Release: Facebook Fans Bring Community Friends Together
FOR IMMEDIATE RELEASE:
Wednesday, March 10, 2010
Washington, D.C.: There is no doubt that the social media trend has changed how the world communicates. From world events and tragedies to simply linking people together in a personal day-to-day style, social forums like Facebook have made an impact. At the Hemophilia Federation of …
Infusion Set Needles [Manufactured by Nipro for Exelint]: Recall
Exel/Exelint Huber needles,
Exel/Exelint Huber Infusion Sets
Exel/Exelint “Securetouch+” Safety Huber Infusion Sets
Audience: Hospital Risk Managers, Surgical Service personnel
FDA notified healthcare professionals of a Class I recall of Exel/Exelint Huber needles, Exel/Exelint Huber Infusion Sets and Exel/Exelint “Securetouch+” Safety Huber Infusion Sets, manufactured by Nipro …
340B Prime Vendor Program, managed by Apexus, and the Hemophilia Alliance announced today an innovative collaborative effort to assist participating federally funded hemophilia treatment centers.
IRVING, Texas/ Lansdale, Pa (January 14, 2010) – The 340B Prime Vendor Program, managed by Apexus, and the Hemophilia Alliance announced today an innovative collaborative effort to assist participating federally funded hemophilia treatment centers in maximizing the benefits of 340B Drug Pricing Program and Prime Vendor Program discounts. The …
Octapharma Receives Orphan Drug Exclusivity Approval for wilate(R …
Octapharma Receives Orphan Drug Exclusivity Approval for wilate(R …
FOXBusiness
“Orphan drug exclusivity confirms Octapharma’s decision to focus exclusively on the treatment of von Willebrand patients. Wilate has a combination of two …
Octapharma Receives Orphan Drug Exclusivity Approval for wilate(R ……
Bayer is now accepting internship applications for the 2010 Bayer Hemophilia Leadership Development Program
The Bayer Hemophilia Leadership Development Program was developed with input from several members of the hemophilia community who saw a need for a program to develop future leaders in the bleeding disorders community. With their support, Bayer HealthCare Pharmaceuticals created an eight-week, paid summer internship at Bayer HealthCare’s U.S. Headquarters …
