Hemophilia Federation of America: Assisting and Advocating for the Bleeding Disorders Community

HFA News

HFA stands committed to keeping the bleeding disorders community abreast to pertinent health and legislative news.  Explore the various News links for articles and information that relate to HFA, Bleeding Disorder Community, Industry, Legislative and Health News.

HFA Adds New Blood Brotherhood Sites

Print This Post Print This Post Posted on: August 10th, 2010 by sswindle | Leave a comment

FOR IMMEDIATE RELEASE:

Monday, August 9, 2010

 Washington, DC: The Hemophilia Federation of America (HFA) is pleased to announce the addition of two new Blood Brotherhood sites, Hemophilia Foundation of Northern California (HFNC) and Hemophilia Foundation of Minnesota/Dakotas (HFMD). Other states hosting local community support groups include Tennessee, Texas, North Carolina, Arizona, …

American Plasma Users Coalition, A-PLUS, Seeks FDA-Community Research Agenda to Enhance The Safety of Our Nation’s Blood Supply

Print This Post Print This Post Posted on: June 9th, 2010 by sswindle | Leave a comment

The Department of Health and Human Services, Advisory Committee on Blood Safety and Availability will be reviewing the current Food and Drug Administration (FDA) policy recommending that men wh have sex with another man (MSM) even one time since 1977 should be deferred indefinitely from donating blood. Click here

Joint Statement on Addressing the MSM Blood Ban by Groups Representing People Living with Hemophilia, Gay Men and People Living with HIV/AIDS

Print This Post Print This Post Posted on: June 9th, 2010 by sswindle | Leave a comment

The Department of  Health & Human Services, Advisory Committee on Blood Safety and Availability will be reviewing the current Food and Drug Administration (FDA) policy recommending that men who have sex with another man (MSM) even one time since 1977 should be deferred indefinitely from donating blood.  Click here for

HFA Press Release: Facebook Fans Bring Community Friends Together

Print This Post Print This Post Posted on: March 10th, 2010 by sswindle | Leave a comment

FOR IMMEDIATE RELEASE:

Wednesday, March 10, 2010

Washington, D.C.:  There is no doubt that the social media trend has changed how the world communicates. From world events and tragedies to simply linking people together in a personal day-to-day style, social forums like Facebook have made an impact.  At the Hemophilia Federation of …

Infusion Set Needles [Manufactured by Nipro for Exelint]: Recall

Print This Post Print This Post Posted on: January 26th, 2010 by sswindle | Leave a comment

Exel/Exelint Huber needles,
Exel/Exelint Huber Infusion Sets
Exel/Exelint “Securetouch+” Safety Huber Infusion Sets

Audience: Hospital Risk Managers, Surgical Service personnel

FDA notified healthcare professionals of a Class I recall of Exel/Exelint Huber needles, Exel/Exelint Huber Infusion Sets and Exel/Exelint “Securetouch+” Safety Huber Infusion Sets, manufactured by Nipro …

Press Release: HFA Voices Blood Safety Concerns

Print This Post Print This Post Posted on: December 11th, 2009 by sswindle | Leave a comment

FOR IMMEDIATE RELEASE:   December 10, 2009

Washington, DC:  The Hemophilia Federation of America (HFA) expresses its concern regarding the ongoing labor issues involving the Teamsters Local 929 and the American Red Cross of Pennsylvania /New Jersey. The national blood system depends on skilled workers to provide clean, safe blood to laboratories. …

Press Release: HFA Recently Approved for NORD Membership

Print This Post Print This Post Posted on: December 10th, 2009 by sswindle | Leave a comment

FOR IMMEDIATE RELEASE:    December 10, 2009

Washington, DC:  The National Organization for Rare Disorders (NORD) recently approved the Hemophilia Federation of America (HFA)for membership.  One of 150 member organizations, the HFA is excited about the opportunity to participate with NORD on important public policy, advocacy, awareness and educational issues.  Certain standards and …

Press Release: HFA HOSTS FIRST ADVOCACY INTENSIVE

Print This Post Print This Post Posted on: October 21st, 2009 by sswindle | Leave a comment

FOR IMMEDIATE RELEASE:     October 20, 2009

 Washington, DC:  The Hemophilia Federation of America (HFA) held its first Advocacy Intensive weekend October 2 – 5, 2009.  The program is a best practice model for bringing HFA social advocacy programs full circle and encouraging members of the bleeding disorders

Advocates in Action: The Forbes’ Family Meets President Obama

Print This Post Print This Post Posted on: October 16th, 2009 by sswindle | Leave a comment

FOR IMMEDIATE RELEASE: October 16, 2009

Washington, DC:   Imagine having the opportunity to visit the Oval Office and meet the President of the United States.  This opportunity became a reality for 12-year old Emmanuel Forbes with severe hemophilia complicated by an inhibitor, his five siblings and parents, Michael …

HFA Press Release: HFA MEETS GOAL OF 1,000 FANS ON OFFICIAL FACEBOOK PAGE!

Print This Post Print This Post Posted on: September 28th, 2009 by sswindle | Leave a comment

FOR IMMEDIATE RELEASE:    September 28, 2009

 Washington, DC:  The Hemophilia Federation of America (HFA) launched its first online community social networking medium in July 2009.  HFA’s official Facebook site is designed to make connections and build relationships with community members across the country. On September 19, 2009, just two …