HFA News & Notes

WFH appoints John Bournas as new CEO/ ED

Click for link to WFH Montreal, Canada, January 10, 2012 — The World Federation of Hemophilia is pleased to [...] Read More >>

U.S. Department of Health and Human Services releases Essential Health Benefits Bulletin

On Monday, Dec. 16, the U.S. Department of Health and Human Services (HHS) released a bulletin outlining guidance [...] Read More >>

BAXTER: PHASE I TRIAL OF LONGER-ACTING RECOMBINANT FVIII

Link to Baxter’s Press Release BAXTER INITIATES PHASE I CLINICAL TRIAL OF LONGER-ACTING RECOMBINANT FVIII [...] Read More >>

Contact Info

Hemophilia Federation of America
210 7th St. SE, Suite 200B
Washington D.C., 20003
800.230.9797
202.675.6984
202.675.6983

© 2011 Hemophilia Federation of America · Board of Directors Only · BB Admin Only · Privacy & Legal

What We Do

Hemophilia, vonWillebrand and other Bleeding Disorders are lifelong conditions that require ongoing care and support. To provide support to this community, HFA provides programs, services, meetings, outreach and advocacy education.

Programs: HFA provides a variety of educational, wellness and financial resources to help the bleeding disorders community stay healthy, and informed. We foster meaningful connections and support through good times and times of hardship. Check out HFA’s Programs today!

Meetings / Events: Every year HFA hosts a national Symposium for people with bleeding disorders and their families. This meeting rotates around the country, bringing the family community together nationally. An estimated 700 attendees participate in rap sessions, networking and receive education from top national speakers and educators. Attend Symposium!

 


Advocacy: If you are new to hemophilia and bleeding disorders or have years of experience championing this community, we welcome you! Join our Outreach and Advocacy Education efforts!

Working together and supporting each other, we can make a difference for people with Bleeding Disorders such as vonWillebrand and hemophilia!