HFA News & Notes

HFA Receives $7,250 United Way Grant

Official Press Release Funding Will Help Support FitFactor Initiatives Washington, D.C. – The Hemophilia [...] Read More >>

Pfizer’s Delivers New Dosage Strength Hemophilia B

Pfizer Hemophilia is pleased to announce that the 3000 IU dose of BeneFIX® is now available for hemophilia B [...] Read More >>

Prolor Reports Positive Results in Hemophilia Study

Link to Article The study found that the mice which received Factor VIIa-CTP showed a superior survival rate. [...] Read More >>

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HFA Receives $7,250 United Way Grant

February 16th, 2012 by Katie Whittle

Official Press Release Funding Will Help Support FitFactor Initiatives Washington, D.C. – The Hemophilia Federation of America (HFA) today announced that the United Way of The National Capital Area has issued a $7,250 grant to help support their FitFactor program in collaboration with one of their local member affiliate chapters, the Hemophilia Foundation of Maryland (HFM).   HFA was one of 700 organizations that applied for this competitive grant. The United Way grant will ...

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Pfizer’s Delivers New Dosage Strength Hemophilia B

February 16th, 2012 by Katie Whittle

Pfizer Hemophilia is pleased to announce that the 3000 IU dose of BeneFIX® is now available for hemophilia B patients. BeneFIX is a recombinant coagulation factor IX product indicated for the control, prevention and perioperative management of bleeding episodes in ...

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Prolor Reports Positive Results in Hemophilia Study

February 14th, 2012 by Katie Whittle

Link to Article The study found that the mice which received Factor VIIa-CTP showed a superior survival rate. Prolor Biotech Inc. (AMEX: PBTH; TASE: PBTH) today reported positive results in a comparative study of its longer-acting version of the hemophilia drug Factor ...

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Developments in Clinical Use of Plasma Therapies

February 14th, 2012 by Katie Whittle

Link to Website IPPC 2012 SPEAKERS TO ADDRESS DEVELOPMENTS IN CLINICAL USE OF PLASMA PROTEIN THERAPIES BRUSSELS, BELGIUM (February 14th, 2012) The International Plasma Protein Congress (IPPC) 2012 will take place on March 13-14 in Madrid, Spain at the Hotel Melia Princesa ...

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HCV/HIV Drug Safety Communication – Drug Interactions

February 9th, 2012 by Katie Whittle

Link to Official FDA Alert         Victrelis (boceprevir) and Ritonavir-Boosted Human Immunodeficiency Virus (HIV) Protease Inhibitor Drugs: Drug Safety Communication - Drug Interactions AUDIENCE: Infectious Disease, Pharmacy ISSUE: FDA notified healthcare professionals and patients that drug interactions between the hepatitis C virus ...

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HFA Press Release: New Staff

February 9th, 2012 by Katie Whittle

Link to PDF of New Staff Press Release HFA Office Welcomes New Additions to Staff Washington, D.C. – The Hemophilia Federation of America (HFA), is pleased to announce four new additions to their staff: Jane Cavanaugh Smith, Matthew Landseadel, Pat Brown, and ...

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Recall of Crickit® Convenience Kits

February 7th, 2012 by Katie Whittle

Click here for FDA recall North American Rescue, LLC Announces A Follow-Up to the Recall of Crickit® Convenience Kits Because of Possible Health Risk Related to Nationwide Recall of Triad Povidone Iodine Prep Pads Contact: Consumer 1-888-689-6277, Monday through Friday, 8:00am to 5:00pm (ET) FOR ...

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WFH appoints John Bournas as new CEO/ ED

January 11th, 2012 by Katie Whittle

Click for link to WFH Montreal, Canada, January 10, 2012 — The World Federation of Hemophilia is pleased to announce the appointment of John Bournas as CEO/Executive Director. Mr Bournas brings over fifteen years of senior managerial experience in the healthcare ...

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U.S. Department of Health and Human Services releases Essential Health Benefits Bulletin

January 6th, 2012 by Eboni Morris

On Monday, Dec. 16, the U.S. Department of Health and Human Services (HHS) released a bulletin outlining guidance to states on implementing Essential Health Benefits (EHBs).  As you may recall, the Affordable Care Act will require individuals to have insurance ...

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BAXTER: PHASE I TRIAL OF LONGER-ACTING RECOMBINANT FVIII

January 5th, 2012 by Katie Whittle

Link to Baxter's Press Release BAXTER INITIATES PHASE I CLINICAL TRIAL OF LONGER-ACTING RECOMBINANT FVIII TREATMENT FOR HEMOPHILIA A Investigational BAX 855 is based on ADVATE Factor VIII Molecule DEERFIELD, Ill., January 5, 2012 – Baxter International Inc. today announced the dosing of ...

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FDA Approves Baxter’s ADVATE as the Only FVIII for Routine Prophylaxis

December 19th, 2011 by Katie Whittle

Direct link to Press Release ADVATE for routine prophylaxis reduced annual bleed events in hemophilia A patients from forty-four to one as compared to an on-demand regimen in a clinical study Once every third day pharmacokinetic dosing option offers some patients the opportunity ...

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Treatment for Blood Disease Is Gene Therapy Landmark

December 12th, 2011 by Katie Whittle

By NICHOLAS WADE Published: December 10, 2011 Medical researchers in Britain have successfully treated six patients suffering from the blood-clotting disease known as hemophilia B by injecting them with the correct form of a defective gene, a landmark achievement in the troubled ...

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TX Bleeding Disorders Advisory

December 5th, 2011 by Katie Whittle

HFA Board Member Lew Collins has been appointed to the Texas State Bleeding Disorders Advisory Council. According to the Texas Department of State Health Services (DSHS) this advisory council will oversee: 1) public use data, outcome data, and other information ...

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