Access
Treatment
Hemophilia and other bleeding disorders are rare and highly specialized disorders that require access to FDA-approved products and treatments or those which follow generally accepted medical standards of care. Coverage should be provided for the full spectrum of treatments and medical services prescribed by a physician. Ongoing medical evidence underscores that access to needed therapies and services lowers the long-term cost of care and increases positive health outcomes.
Integrated Care
Bleeding disorder patients may have additional chronic conditions associated with their hemophilia such as HIV, HCV and joint disease. They may require access to physical therapy, antiviral medications and mental health services. Access to additional providers and treatments are essential in addressing chronic health conditions.
Care System of Specialists
Patients require access to provider specialists who work with them to formulate the best treatment regime at the appropriate site of care (hospital, outpatient clinic, physician’s office, hemophilia treatment center (HTC) or at home).
2011 Priority Areas:
(See State Legislative Map to determine if there is pending legislation in your state on these issues)
- Medicaid Cuts
- Formulary Restrictions
- Standards of Care / Service
- Burdensome Cost Sharing Requirements
HFA opposes policies that limit access to providers, treatments, products and services.