HFA News & Notes

HFA Receives $7,250 United Way Grant

Official Press Release Funding Will Help Support FitFactor Initiatives Washington, D.C. – The Hemophilia [...] Read More >>

Pfizer’s Delivers New Dosage Strength Hemophilia B

Pfizer Hemophilia is pleased to announce that the 3000 IU dose of BeneFIX® is now available for hemophilia B [...] Read More >>

Prolor Reports Positive Results in Hemophilia Study

Link to Article The study found that the mice which received Factor VIIa-CTP showed a superior survival rate. [...] Read More >>

Contact Info

Hemophilia Federation of America
210 7th St. SE, Suite 200B
Washington D.C., 20003
800.230.9797
202.675.6984
202.675.6983

© 2011 Hemophilia Federation of America · Board of Directors Only · BB Admin Only · Privacy & Legal

Board of Directors

Honoring Volunteers 

Volunteers are a vital part of the HFA’s success in serving the bleeding disorders community. Their lasting contributions of time, talent, and dedication ensure that the HFA fulfills its mission. Accordingly, volunteers make up the HFA Board and also serve as chairs and members of HFA program committees.

    Group photo of HFA's Board of Directors at the 2009 Annual Board meeting In Indianapolis, IN

Group photo of HFA's Board of Directors at the 2009 Annual Board meeting In Indianapolis, IN

The Board of Directors and officers of Hemophilia Federation of America as of April 2011:

Officers

  • Paul Brayshaw, Board President
  • Matthew Compton,Board Vice President
  • Tracy Cleghorn, Board Vice President / Secretary
  • Chad Stevens, Board Treasurer
  • Ryan Crowe, Member at Large
  • Carlos Ruiz, Member at Large

Directors

  • Robin Parker, Hemophilia Foundation of Arkansas, Inc.
  • Melinda Cadena, Arizona Hemophilia Association
  • Mandy McCullough, Connecticut Hemophilia Society, Inc.
  • Douglas Hartsough, Hemophilia Foundation of Northern California
  • Steve Tejram, Florida Hemophilia Association
  • Chad Stevens, Snake River Hemophilia & Bleeding Disorders Association
  • Open, Hemophilia Foundation of Illinois
  • Beate Keith, Hemophilia of Iowa
  • Open, Hemophilia of Indiana
  • Teri Doran-Rogers, Hemophilia of New Jersey
  • Edgar Guedry, Louisiana Hemophilia Foundation
  • Ryan Melton, Hemophilia Foundation of Maryland
  • Dan Tinklenberg, Hemophilia Foundation of Minnesota and the Dakotas
  • Larry Miller, Gateway Hemophilia Association
  • David Taylor, Nebraska Chapter of NHF
  • Melissa Penn, New York City Hemophilia Chapter
  • Chuck Skopinsky, Mary M. Gooley Hemophilia Center
  • Dave Huskie, Bleeding Disorders Association of NE New York
  • Lori Long, Sangre de Oro Hemophilia Foundation of New Mexico
  • Lesa Kaercher, Bleeding Disorders Association of the Southern Tier, Inc.
  • Matt Igelman, Hemophilia of North Carolina
  • Mary Ellen Mackey, Northern Ohio Hemophilia Foundation, Inc.
  • Sandra Lilly, Oklahoma Hemophilia Foundation
  • Jim Dawdy, Hemophilia Foundation of Oregon
  • Stanford Murry, Tennessee Hemophilia and Bleeding Disorder Foundation
  • Brian Compton, Lone Star Chapter of NHF
  • Ryan Crowe, Texas Central Hemophilia Association
  • Paul Brayshaw, Hemophilia Association of the Capital Area
  • Tracy Cleghorn, United Virginia Chapter of NHF
  • Joe Zweir, Wisconsin Bleeding Disorders Network
  • Tom Russamano, Independent Member
  • Carlos Ruiz, Independent Member
  • Linda E. Collins, Independent Member

Professional Advisors

  • Donald Akers, Jr., General Counsel
  • Christopher Walsh, MD, Medical Advisor
  • Linda Wyman-Collins, RN, Medical Advisor
  • Greg McClure, LSW, Medical Advisor