Page 3 - HFA Dateline 2013 Q4 Winter
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this is Your Community! Become a HFA Member! How many organizations exist to support the bleeding disorders community? There are many regional organizations that support families and individuals living with a bleeding disorder at a local level The two biggest nationwide, non-profit organizations supporting the bleeding disorders community in the United States are the National Hemophilia foundation (NHf) and the Hemophilia federation of America (HfA) How are nHF and HFA What is the benefit of becoming a member of HFA? different? NHf and HfA Since 1994, HfA has proudly supported the bleeding disorders community by complement each other to ef- providing educational programming, support for the entire family, interactive fectively support the bleeding national conferences, and critical assistance programs Your friendship and loy- disorders community NHf is dedi- alty are very important to us We develop our programs and services with you cated to finding better treatments in mind We listen to your comments, posts, calls, emails, and develop our ma- and cures for inheritable bleeding terials, webinars, social media, and meetings based on your feedback In 2014, disorders and to preventing the we are celebrating our 20th anniversary! We feel great about what we have complications of these disorders accomplished and we are anxious to do more! In the year ahead you will see: through education, advocacy, • New local sites added for our popular Dads In Action program and research HfA’s mission is to advocate, assist, and support the • New materials, webinars, and local sites for our re-energized bleeding disorders community to Blood Sisterhood program ensure the best quality of life for • Educational articles and support information as we grow our new all people living with a bleeding MomsConnect program disorder • A tremendous amount of information on Advocacy and Policy via our online “dear Addy” articles, our website, and new printed materials • A new inhibitor track at Symposium, a first of its kind day session geared to- What is the cost of wards uniting individuals and families living with a high responding inhibitor becoming a member? • The biggest and most exciting Symposium yet! As always, many The membership dues are very scholarships will be available to new attendees, but in celebration of our low - $25 for an annual individual 20th anniversary, we will be raffling scholarships among individuals and membership and $50 for an annual families who become members of HFA in 2014 (even if they have family membership attended Symposium in the past) • And much, much, more! How do i become a member? Check your How will HFA use the funds raised from membership? home mailbox and your inbox for 100% of the funds raised via membership dues in 2013 will go to support the membership information or Helping Hands program This one-of-a-kind critical program assists individu- register online at als and families living with a bleeding disorder who are going through http://member hemophiliafed org a temporary financial crisis Winter 2013 | Dateline Federation 3
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